Ask the people: developing guidelines for genomic research with Aboriginal and Torres Strait Islander peoples

S Kaladharan, ME Vidgen, JV Pearson… - … Global Health, 2021 - gh.bmj.com
… of genomic research projects in partnership with Aboriginal and Torres Strait Islander peoples
social implications, and First Nations peoples with cultural and community expectations for …

The practice of engaging aboriginal and Torres Strait islander communities in genome research

S Huebner, A Hermes, S Easteal - … research ethics: Claiming research …, 2020 - emerald.com
genome research and the ensuing benefits of this research into the future: We’re not actively
recruiting people … easier to work with new material, so if people are still living we ask them to …

[HTML][HTML] Investigating disparity in access to Australian clinical genetic health services for Aboriginal and Torres Strait Islander people

J Luke, P Dalach, L Tuer, R Savarirayan… - Nature …, 2022 - nature.com
… Also, consistent with our findings, a review of studies from the United … genomic health services
requires a shift from service design for to with Aboriginal and Torres Strait Islander peoples

Australian Aboriginal and Torres Strait Islander collections of genetic heritage: the legal, ethical and practical considerations of a dynamic consent approach to …

M Prictor, S Huebner, HJA Teare… - The Journal of Law …, 2020 - journals.sagepub.com
… in rare diseases and genomics, to enable people to control and … Aboriginal and Torres Strait
Islander people (First Peoples of … in genomic research are the central subjects of this article. …

[HTML][HTML] … ! Talk straight to me!” perspectives on accessible and culturally safe care among Aboriginal and Torres Strait Islander patients of clinical genetics services

P Dalach, R Savarirayan, G Baynam… - … for Equity in Health, 2021 - Springer
… of Aboriginal and Torres Strait Islander people who had attended a mainstream clinical
genetics service in the … The results of this study highlight barriers to Aboriginal and Torres Strait

[HTML][HTML] A pathway to precision medicine for Aboriginal Australians: a study protocol

YY Cheng, J Nunn, J Skinner, B Rambaldini… - Methods and …, 2021 - mdpi.com
… with people of Aboriginal and Torres Strait Islander ancestry due to the paucity of genomic
… As the nature of our topic (ie, genomics research and research with Aboriginal communities) …

[PDF][PDF] Investigating equity in access to Australian clinical genetic health services for Aboriginal and Torres Strait Islander people

J Luke, P Dalach, L Tuer, R Savarirayan, A Ferdinand… - 2021 - scholar.archive.org
… genetic health services, increasing genomic literacy of health … among Aboriginal and/or
Torres Strait Islander people in … research makes an essential contribution to the eld of health

[HTML][HTML] Genomics and inclusion of Indigenous peoples in high income countries

K Gwynne, S Jiang, R Venema, V Christie… - Human Genetics, 2023 - Springer
… many reasons why Indigenous people have been largely left out of genomics research and,
… , CINAHL, and Aboriginal and Torres Strait Islanders Health Informit Database. The search …

[PDF][PDF] Equitable expanded carrier screening needs indigenous clinical and population genomic data

S Easteal, RM Arkell, RF Balboa, SA Bellingham… - … of Human Genetics, 2020 - cell.com
… in genomic research is essential to enable equitable outcomes in ECS and other areas of
genomic … Some Aboriginal and/or Torres Strait Islander people have pathogenic variants …

Expanded carrier screening for monogenic diseases for Australians of Aboriginal and/or Torres Strait Islander descent

S Easteal, R McWhirter - 2020 - osf.io
… populations in genomic research is … in people of Aboriginal and/or Torres Strait Islander
descent. We argue that significant effort is required to build the evidence base and genomic