[HTML][HTML] Using indigenous standards to implement the CARE principles: Setting expectations through tribal research codes

SR Carroll, I Garba, R Plevel, D Small-Rodriguez… - … in Genetics, 2022 - frontiersin.org
… The results are research with little or no benefit to the communities from which the data …
participation in genetics and genomics research, and limited oversight by the people from whom …

[HTML][HTML] Partnering with First Nations in Northern British Columbia Canada to Reduce Inequity in Access to Genomic Research

NR Caron, W Adam, K Anderson, BT Boswell… - … Research and Public …, 2023 - mdpi.com
… ethical transgressions in health research involving Indigenous Peoples in Canada, the … it
comes to health research and Indigenous communities. As a result, genomic research elicits …

[HTML][HTML] Culturally safe eHealth interventions with Aboriginal and Torres Strait Islander People: protocol for a best practice framework

GR Chelberg, K Butten, R Mahoney - JMIR research …, 2022 - researchprotocols.org
… Objective: The aim of this research program is to prepare a … of health care for Aboriginal and
Torres Strait Islander people. … Ask the people: developing guidelines for genomic research

[HTML][HTML] Making community voices heard in a researchhealth service alliance, the evolving role of the Community Advisory Group: a case study from the members' …

JL Wale, L Di Pietro, H Renton, M Sahhar… - Research Involvement …, 2021 - Springer
… knowledge in the technical nature of genetics and genomics, quality of health care, and in …
representatives—including from Aboriginal and Torres Strait Island communities—will have to …

A roadmap to increase diversity in genomic studies

S Fatumo, T Chikowore, A Choudhury, M Ayub… - Nature medicine, 2022 - nature.com
… The importance of the community in setting research priorities—the Tiwi Island Aboriginal
population Aboriginal and Torres Strait Islander people in Australia are one of the largest …

[HTML][HTML] Aboriginal and Torres Strait Islander family access to continuity of health care services in the first 1000 days of life: a systematic review of the literature

N Sivertsen, O Anikeeva, J Deverix, J Grant - … health services research, 2020 - Springer
… at health care holistically we need to examine the health care … best practice from research,
health care systems, structure and … health care outcomes without a focus on continuity of care

[HTML][HTML] The pharmacogenomic landscape of an Indigenous Australian population

SR Samarasinghe, W Hoy, S Jadhao… - Frontiers in …, 2023 - frontiersin.org
… Background: Population genomic studies of individuals of … and genome-wide association
studies, contributing to a “genomic gap” … genomic and drug safety datasets are sorely lacking. …

Codesigning enhanced models of care for Northern Australian Aboriginal and Torres Strait Islander youth with type 2 diabetes: study protocol

R Kirkham, S Puszka, A Titmuss, N Freeman… - BMJ open, 2024 - bmjopen.bmj.com
researchers. In each of the four regions, we aim to recruit 15 young Aboriginal and Torres
Strait Islander people … In collaboration with young Aboriginal and Torres Strait Islander people

Data for action: The Family and Community Safety for Aboriginal and Torres Strait Islander Peoples (FaCtS) Study

K Thurber, E Colonna, S Wells… - … Aboriginal Studies, 2021 - search.informit.org
… who shared their stories and participated in this research and the Aboriginal and Torres
Strait Islander Community Researchers and community organisation representatives who …

[HTML][HTML] Indigenous Australian genomes show deep structure and rich novel variation

, … Centre for Indigenous Genomics Farlow Ashley 3 … - Nature, 2023 - nature.com
… Although this and previous studies infer recent PNG or Torres Strait Island-related ancestry
in North Queensland (here Yarrabah) 1,17,37 , we find no evidence of recent admixture from …