The while of participation: A systematic review of participatory research involving people with sensory impairments and/or intellectual impairments

J Rix, HG Carrizosa, J Seale, K Sheehy… - Disability & …, 2020 - Taylor & Francis
… From early on, participants had said they wanted to make sure we were taking advantage of
… working processes of the research groups; creating, practical and moral questions that are …

Empowerment in decision-making for autistic people in research

MA Cascio, JA Weiss, E Racine - Disability & Society, 2021 - Taylor & Francis
… This article reviews the literature on ethics in autism research … This section highlights
strategies participatory research … for autistic people engaging in research as co-researchers, not …

Engaging with care: ethical issues in Participatory Research

S Bussu, M Lalani, S Pattison… - … Research, 2021 - journals.sagepub.com
… We tried to manage these situations by following an ethics of care approach and creating
intellectual honesty with regard to the findings. We emphasised the focus on learning rather …

A review of approaches, strategies and ethical considerations in participatory research with children

M Montreuil, A Bogossian… - International …, 2021 - journals.sagepub.com
… to different steps of the research process. However, “participatory research” is an umbrella
… and children’s participation in making decisions related to the research process. As such, it …

[PDF][PDF] Community-based participatory research: A guide to ethical principles and practice

S Banks - 2022 - durham-repository.worktribe.com
… or people with learning disabilities, cognitive or sensory impairments are to be involved as
research … to maximise democratic participation in decision-making and in various parts of the …

“That felt like real engagement”: Fostering and maintaining inclusive research collaborations with individuals with intellectual disability

AE Schwartz, JM Kramer, ES Cohn… - … health research, 2020 - journals.sagepub.com
… in this study, two long-standing research teams described making … ) ethical principles in their
treatment of individuals participating … participatory research. Journal of Policy and Practice in …

Ask us! Adjusting experience‐based codesign to be responsive to people with intellectual disabilities, serious mental illness or older persons receiving support with …

M Heerings, H van de Bovenkamp… - Health …, 2022 - Wiley Online Library
… We conducted participatory research in … of participatory research with vulnerable populations,
which emerged during the process of redesigning the various dialogue sessions, is making

Creating accessible survey instruments for use with autistic adults and people with intellectual disability: Lessons learned and recommendations

C Nicolaidis, DM Raymaker, KE McDonald… - Autism in …, 2020 - liebertpub.com
adults and people with intellectual disability. While we used a community-based participatory
research (… , assuming that researchers pay close attention to ethically including autistic …

'It all sounds very interesting, but we're just too busy!': Exploring why 'gatekeepers' decline access to potential research participants with learning disabilities

P Williams - European Journal of Special Needs Education, 2020 - Taylor & Francis
… the people they support the chance to consider participation. … that people with LD benefit
from research (in line with ethics … ; adults with ID must have a major role in making them’. …

“I Knew She'd Get It, and Get Me”: Participants' Perspectives of a Participatory Autism Research Project

E Pellicano, W Lawson, G Hall, J Mahony… - Autism in …, 2022 - liebertpub.com
Ethical approval for the study was obtained from Macquarie University's Human … biases
make it unclear whether our participants' positive sentiments about participatory research will be …