The while of participation: A systematic review of participatory research involving people with sensory impairments and/or intellectual impairments
… From early on, participants had said they wanted to make sure we were taking advantage of
… working processes of the research groups; creating, practical and moral questions that are …
… working processes of the research groups; creating, practical and moral questions that are …
Empowerment in decision-making for autistic people in research
… This article reviews the literature on ethics in autism research … This section highlights
strategies participatory research … for autistic people engaging in research as co-researchers, not …
strategies participatory research … for autistic people engaging in research as co-researchers, not …
Engaging with care: ethical issues in Participatory Research
S Bussu, M Lalani, S Pattison… - … Research, 2021 - journals.sagepub.com
… We tried to manage these situations by following an ethics of care approach and creating …
intellectual honesty with regard to the findings. We emphasised the focus on learning rather …
intellectual honesty with regard to the findings. We emphasised the focus on learning rather …
A review of approaches, strategies and ethical considerations in participatory research with children
M Montreuil, A Bogossian… - International …, 2021 - journals.sagepub.com
… to different steps of the research process. However, “participatory research” is an umbrella
… and children’s participation in making decisions related to the research process. As such, it …
… and children’s participation in making decisions related to the research process. As such, it …
[PDF][PDF] Community-based participatory research: A guide to ethical principles and practice
S Banks - 2022 - durham-repository.worktribe.com
… or people with learning disabilities, cognitive or sensory impairments are to be involved as
research … to maximise democratic participation in decision-making and in various parts of the …
research … to maximise democratic participation in decision-making and in various parts of the …
“That felt like real engagement”: Fostering and maintaining inclusive research collaborations with individuals with intellectual disability
AE Schwartz, JM Kramer, ES Cohn… - … health research, 2020 - journals.sagepub.com
… in this study, two long-standing research teams described making … ) ethical principles in their
treatment of individuals participating … participatory research. Journal of Policy and Practice in …
treatment of individuals participating … participatory research. Journal of Policy and Practice in …
Ask us! Adjusting experience‐based codesign to be responsive to people with intellectual disabilities, serious mental illness or older persons receiving support with …
M Heerings, H van de Bovenkamp… - Health …, 2022 - Wiley Online Library
… We conducted participatory research in … of participatory research with vulnerable populations,
which emerged during the process of redesigning the various dialogue sessions, is making …
which emerged during the process of redesigning the various dialogue sessions, is making …
Creating accessible survey instruments for use with autistic adults and people with intellectual disability: Lessons learned and recommendations
… adults and people with intellectual disability. While we used a community-based participatory
research (… , assuming that researchers pay close attention to ethically including autistic …
research (… , assuming that researchers pay close attention to ethically including autistic …
'It all sounds very interesting, but we're just too busy!': Exploring why 'gatekeepers' decline access to potential research participants with learning disabilities
P Williams - European Journal of Special Needs Education, 2020 - Taylor & Francis
… the people they support the chance to consider participation. … that people with LD benefit
from research (in line with ethics … ; adults with ID must have a major role in making them’. …
from research (in line with ethics … ; adults with ID must have a major role in making them’. …
“I Knew She'd Get It, and Get Me”: Participants' Perspectives of a Participatory Autism Research Project
E Pellicano, W Lawson, G Hall, J Mahony… - Autism in …, 2022 - liebertpub.com
… Ethical approval for the study was obtained from Macquarie University's Human … biases
make it unclear whether our participants' positive sentiments about participatory research will be …
make it unclear whether our participants' positive sentiments about participatory research will be …