“It is bad because it limits capacity building here back at home” Genetic and genomic researchers' perspectives on biological sample sharing in collaborative research

D Kaawa-Mafigiri, D Ekusai-Sebatta, I Munabi… - medRxiv, 2022 - medrxiv.org
… The H3Africa Consortium has a biorepository program that is … in sub-Saharan Africa that
informed this study including 1) … including repositories and centralized laboratory systems and …

Developing Ethics Principles for Guiding Benefit Sharing in Biobanking in Kenya

A Sudoi - 2024 - oro.open.ac.uk
research and offering healthcare maintain sample repositories, but this is not well documented
in most parts in Sub-Saharanstudy, I adopt a synthesised definition as follows: a biobank

Genome Tunisia Project: paving the way for precision medicine in North Africa

Y Hamdi, M Trabelsi, K Ghedira, M Boujemaa… - Genome Medicine, 2024 - Springer
… groups in Sub-Saharan Africa and released whole-genome … to create a national biorepository
that will gather biological … can exploit the power of a centralized large cohort collection and …

An overview of benefits and challenges of rare disease biobanking in Africa, focusing on South Africa

EH Conradie, H Malherbe, CJ Hendriksz… - Biopreservation and …, 2021 - liebertpub.com
… RD biobank on the African continent. The vision and goals of the CHM Biobank address
national and international research … due to the lack of a centralized patient database/registry with …

A review of regulatory frameworks governing biobanking in the low and middle income member countries of BCNet

P Vodosin, AK Jorgensen, M Mendy… - Biopreservation and …, 2021 - liebertpub.com
… As part of its support to the LMIC biobanks, the International Agency for Research on
Cancer (IARC) established a biobank and population cohort building network (BCNet) 10,11 in …

[PDF][PDF] Considerations for an integrated population health databan k in Africa: lessons from global best practices [version 1; peer

JO Igumbor, EN Bosire, M Vicente-Crespo, EU Igumbor… - 2021 - academia.edu
… Results: Our findings described global stakeholder experiences on research data sharing.
We identified some challenges and measures to harness available resources and incentivise …

An African Genome Variation Database and its applications in human diversity and health

D Todt - 2021 - open.uct.ac.za
… relatively lower genetic diversity observed in non-Africans. Population genetic studies have
refined our understanding of human evolutionary history and clinical genomic studies have …

Genomic-informed pathogen surveillance in Africa: opportunities and challenges

SC Inzaule, SK Tessema, Y Kebede… - The Lancet Infectious …, 2021 - thelancet.com
… We discuss opportunities and challenges for integrating pathogen genomics into public …
community of practice of genomics experts are all needed to use genomics for improved disease …

Integrated strategies for durable rice blast resistance in sub-Saharan Africa

SK Mutiga, F Rotich, VM Were, JM Kimani… - Plant …, 2021 - Am Phytopath Society
… A complementary GHBS is then conducted using genetically diverse isolates of M. oryzae,
which are available in our biobank. The two phenotyping levels are applied to avoid escapes …

A systematic evaluation of the performance and properties of the UK Biobank Polygenic Risk Score (PRS) Release

…, M Futema, Genomics England Research Consortium… - PLoS …, 2024 - journals.plos.org
… used this pipeline to benchmark the UK Biobank PRS Release. We have … Biobank Research
Access Platform, along with the associated phenotype definitions, to allow other researchers