Quality of life of parents of children with Autism Spectrum Disorder: An integrative literature review

D Turnage, N Conner - Journal for Specialists in Pediatric …, 2022 - Wiley Online Library
D Turnage, N Conner
Journal for Specialists in Pediatric Nursing, 2022Wiley Online Library
Purpose This paper presents an integrated literature review of the quality of life (QOL) in
parents of individuals with Autism Spectrum Disorder (ASD). The rate of ASD is increasing.
Parents of children with ASD have higher levels of stress and burden, which may lead to
lower QOL. Design and Methods A comprehensive, electronic search was performed to
retrieve 15 relevant articles, including 5565 participants. An integrative review was
performed to appraise and synthesize findings. Results QOL was found to be lower in …
Purpose
This paper presents an integrated literature review of the quality of life (QOL) in parents of individuals with Autism Spectrum Disorder (ASD). The rate of ASD is increasing. Parents of children with ASD have higher levels of stress and burden, which may lead to lower QOL.
Design and Methods
A comprehensive, electronic search was performed to retrieve 15 relevant articles, including 5565 participants. An integrative review was performed to appraise and synthesize findings.
Results
QOL was found to be lower in parents of children with ASD in physical, psychological, and social health and in spirituality, as compared with adults who were not parents of children with ASD. The strongest risk factor for parental QOL was the severity of the diagnosis of ASD. Protective factors for parental QOL were parent education level and levels of severity of ASD in the child.
Practice Implications
Nurses can support families impacted by ASD, particularly severe ASD, through tailored resources to support early diagnosis and intervention, through the support of policies affecting low‐income families, and through increased awareness of severe ASD and its' impact on the child and the family.
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