Advances in managing transition to adulthood for adolescents with congenital heart disease: a practical approach to transition program design: a scientific statement …
AS John, JL Jackson, P Moons, K Uzark… - Journal of the …, 2022 - Am Heart Assoc
… survive to adulthood, including those with complex heart conditions. Maintaining lifelong
medical care … Incorporating transition programs and adapting existing technologies can aide in …
medical care … Incorporating transition programs and adapting existing technologies can aide in …
[HTML][HTML] Facilitating transition of young people with long-term health conditions from children's to adults' healthcare services–implications of a 5-year research …
… ) were deliberately chosen to include individuals that varied considerably in their healthcare
needs, psychosocial complexity and availability of adult services. We recruited from all …
needs, psychosocial complexity and availability of adult services. We recruited from all …
Outcomes of pediatric to adult health care transition interventions: an updated systematic review
A Schmidt, SM Ilango, MA McManus, KK Rogers… - Journal of pediatric …, 2020 - Elsevier
… social complexity, as well as youth without special health care … Since HCT encompasses a
complex set of activities within … of HCT implementation, and the adaptation of HCT activities as …
complex set of activities within … of HCT implementation, and the adaptation of HCT activities as …
[HTML][HTML] Examination of transition readiness, medication adherence, and resilience in pediatric chronic illness populations: a pilot study
T Verma, J Rohan - International Journal of Environmental Research and …, 2020 - mdpi.com
… , including following complex medical recommendations and … and ultimately successful
transition from pediatric to adult care [… for their disease management and must adapt to the unique …
transition from pediatric to adult care [… for their disease management and must adapt to the unique …
[HTML][HTML] Transition readiness measures for adolescents and young adults with chronic health conditions: a systematic review
S Parfeniuk, K Petrovic, PL MacIsaac… - … of Transition Medicine, 2020 - degruyter.com
… -neutral tools, except the ADAPT were used with a single disease … The ADAPT, a measure
that was developed during the … One study involved 1632 adolescents from both complex …
that was developed during the … One study involved 1632 adolescents from both complex …
Health care utilization, transition readiness, and quality of life: A latent class analysis
KA Traino, CM Sharkey, MN Perez… - Journal of Pediatric …, 2021 - academic.oup.com
Objective To identify possible subgroups of health care utilization (HCU) patterns among
adolescents and young adults (AYAs) with a chronic medical condition (CMC), and examine …
adolescents and young adults (AYAs) with a chronic medical condition (CMC), and examine …
Transition to adulthood and transfer to adult care of adolescents with congenital heart disease: a global consensus statement of the ESC Association of …
P Moons, EL Bratt, J De Backer… - European heart …, 2021 - academic.oup.com
… of teens and adults living with moderate and complex CHD. Consequently, patients and
families need to be prepared for the emerging adulthood. … with CHD, which can be adapted as …
families need to be prepared for the emerging adulthood. … with CHD, which can be adapted as …
Resilience despite complex trauma: Family environment and family cohesion as protective factors
AD Daniels, J Bryan - The Family Journal, 2021 - journals.sagepub.com
… In the present study, the characteristics of resilience consist of the ability to adapt, … complex
trauma, a reason for the significance of the present study, as we address all of complex …
trauma, a reason for the significance of the present study, as we address all of complex …
“This is how hard it is”. Family experience of hospital-to-home transition with a tracheostomy
LG Amar-Dolan, MH Horn, B O'Connell… - Annals of the …, 2020 - atsjournals.org
… a medical provider, adapting the home environment and family … Families participating in
our study described a complex … the default medical home for children with medical complexity, …
our study described a complex … the default medical home for children with medical complexity, …
Paediatric to adult transition care for patients with sickle cell disease: a global perspective
BPD Inusa, CE Stewart, S Mathurin-Charles… - The Lancet …, 2020 - thelancet.com
… adapted to local needs. We highlighted priorities to consider for any young person with sickle
cell disease transitioning from paediatric to adult health care… for the complex care required …
cell disease transitioning from paediatric to adult health care… for the complex care required …