Global public perceptions of genomic data sharing: what shapes the willingness to donate DNA and health data?
… presents results from a very large public survey on attitudes toward genomic data sharing. …
Trust in genomic data sharing among members of the general public in the UK, USA, Canada …
Trust in genomic data sharing among members of the general public in the UK, USA, Canada …
Demonstrating trustworthiness when collecting and sharing genomic data: public views across 22 countries
… of public perspectives on genomic data sharing including … to increase trust as genomic data
sharing continues globally. … and/or shared histories, such as Canada or the UK. The clade …
sharing continues globally. … and/or shared histories, such as Canada or the UK. The clade …
Members of the public in the USA, UK, Canada and Australia expressing genetic exceptionalism say they are more willing to donate genomic data
, … Stream of the Global Alliance for Genomics … - European Journal of …, 2020 - nature.com
… of data sharing pertains to the perceived similarities and differences between DNA and other
forms of personal data… for multi-level models, with 95% confidence intervals (CI) for the final …
forms of personal data… for multi-level models, with 95% confidence intervals (CI) for the final …
A deliberative study of public attitudes towards sharing genomic data within NHS genomic medicine services in England
L Hassan, A Dalton, C Hammond… - Public Understanding …, 2020 - journals.sagepub.com
… We ran deliberative focus groups to explore views among 44 patients and members of the
public about proposals for wider genomic data sharing for clinical care. Participants were …
public about proposals for wider genomic data sharing for clinical care. Participants were …
Sharing genomic data from clinical testing with researchers: public survey of expectations of clinical genomic data management in Queensland, Australia
ME Vidgen, S Kaladharan, E Malacova, C Hurst… - BMC Medical …, 2020 - Springer
… inform public policy and discussions around genomic data sharing, we sought public opinions
on using genomic data … different between anonymised and identifiable genomic data. This …
on using genomic data … different between anonymised and identifiable genomic data. This …
What motivates the sharing of consumer-generated genomic information?
RM Hendricks-Sturrup, CY Lu - SAGE Open Medicine, 2020 - journals.sagepub.com
… of all members of a diverse community, we believe that stakeholders … to engage in genomic
information sharing activities. … from the United States (60.33%), followed by Canada (5.17%…
information sharing activities. … from the United States (60.33%), followed by Canada (5.17%…
Patients' and public views and attitudes towards the sharing of health data for research: a narrative review of the empirical evidence
… Nevertheless, we believe our findings point towards … —support among patients and the
public for data sharing for health … and the general public towards genomic data sharing: a …
public for data sharing for health … and the general public towards genomic data sharing: a …
[HTML][HTML] Bridging the European data sharing divide in genomic science
F Molnár-Gábor, MJS Beauvais, A Bernier… - Journal of Medical …, 2022 - jmir.org
… solutions that would enable genomic data to be transferred to … We believe that the analysis
of administrative practices that … for this work from the Canada Foundation for Innovation …
of administrative practices that … for this work from the Canada Foundation for Innovation …
[HTML][HTML] Patients' and Members of the Public's Wishes Regarding Transparency in the Context of Secondary Use of Health Data: Scoping Review
… across Canada, (3) decision-making about what data are … In a survey of public perspectives
on genomic data sharing … one’s data was ranked highly as a measure to increase trust (…
on genomic data sharing … one’s data was ranked highly as a measure to increase trust (…
[HTML][HTML] Italian public's views on sharing genetic information and medical information: findings from the 'Your DNA, Your Say'study
V Romano, R Milne, D Mascalzoni - Wellcome Open Research, 2021 - ncbi.nlm.nih.gov
… in the collection and sharing of genomic data is thus critical … We believe that the findings
presented in this article can be … at improving public awareness of genomics and data sharing in …
presented in this article can be … at improving public awareness of genomics and data sharing in …