Validation of the Quality of Life in Childhood Epilepsy Questionnaire (QOLCE-55 and QOLCE-16) for use by parents of young adults with childhood-onset epilepsy

K Puka, SW Goodwin, MA Ferro, ML Smith, E Widjaja… - Epilepsy & Behavior, 2020 - Elsevier
… The current study aimed to validate the QOLCE for young adults with epilepsy to allow for
reliable assessments of HRQOL over time, from early childhood through emerging adulthood. …

Epilepsy‐specific patient‐reported outcome measures of children's health‐related quality of life: A systematic review of measurement properties

H Crudgington, M Rogers, H Morris, P Gringras… - …, 2020 - Wiley Online Library
childhood epilepsy questionnaires, identified by an existing systematic review.9 In addition,
we combined terms for epilepsy … , structural validity and test re-test validity and measurement

PedsQL™ Cognitive Functioning Scale in youth with epilepsy: Reliability and validity

JW Varni, KF Junger, T Kellermann, LB Grossman… - Epilepsy & Behavior, 2020 - Elsevier
… PedsQL™ Cognitive Functioning Scale would be significantly … validity by examining the
association of epilepsy-specific clinical variables with the PedsQL™ Cognitive Functioning Scale

The Quality of Life of Children with Epilepsy and the Impact of the Disease on the Family Functioning

A Rozensztrauch, A Kołtuniuk - International journal of environmental …, 2022 - mdpi.com
… and social functioning of children and their families. The main objective of this study was to
assess the quality of life (QoL) in children with diagnosed epilepsy and the impact of a child’s …

Trajectories of quality of life 10 years following a diagnosis of epilepsy in childhood

K Puka, MA Ferro, CS Camfield, SD Levin, ML Smith… - …, 2020 - Wiley Online Library
… Lastly, we evaluated children's and AYA's HRQOL as measured by a validated parent-reported
measure (the QOLCE-55), and understand that self and parent reports may differ. We …

Seizure freedom improves health‐related quality of life after epilepsy surgery in children

P Jain, ML Smith, K Speechley, M Ferro… - … Medicine & Child …, 2020 - Wiley Online Library
… there is no validated instrument to measure HRQoL below this age. It is possible that younger
children stand to benefit more from epilepsy surgery, as recurrent seizures have a shorter …

Impact of epilepsy surgery on quality of life and burden of caregivers in children and adolescents

STF Leal, MV Santos, U Thomé, HR Machado… - Epilepsy & Behavior, 2020 - Elsevier
… The objective of this study was to analyze the impact of pediatric epilepsy surgery on the quality
of life (QOL)… The QVCE-50 has good validity and reliability. It is a useful tool for analyzing …

Epilepsy and quality of life: what does really matter?

M Tombini, G Assenza, L Quintiliani, L Ricci… - Neurological …, 2021 - Springer
Scale of Epilepsy (SSE) [20] that we recently validated in Italian language [9] consists of a
multiple-choice questionnaire … It covers a range of topics about the perception of epilepsy in …

Quality of Life in Epilepsy: Same questions, but different meaning to different people

TT Sajobi, CB Josephson, R Sawatzky, M Wang… - …, 2021 - Wiley Online Library
Quality of Life in Epilepsy inventory is a family of validated PROMs for assessing HRQOL in
patients with epilepsy… patients with epilepsy respond to questions about their quality of life. …

Health-related quality of life in children and adolescents with epilepsy in Enugu: Need for targeted intervention

AE Aronu, N Uwaezuoke, JM Chinawa… - Nigerian journal of …, 2021 - journals.lww.com
… the HRQOL in Nigerian children with epilepsy and compare it with that in healthy children. …
Beyond seizure control, epilepsy management should be oriented towards ensuring the …