[PDF][PDF] Investigating equity in access to Australian clinical genetic health services for Aboriginal and Torres Strait Islander people

J Luke, P Dalach, L Tuer, R Savarirayan, A Ferdinand… - 2021 - scholar.archive.org
Globally, there is a recognised need for a greater commitment to an equity agenda in clinical
genomics and precision medicine. Fundamental to this, is the equitable access by all to …

Investigating disparity in access to Australian clinical genetic health services for Aboriginal and Torres Strait Islander people

J Luke, P Dalach, L Tuer, R Savarirayan… - Nature …, 2022 - nature.com
Globally, there is a recognised need that all populations should be able to access the
benefits of genomics and precision medicine. However, achieving this remains constrained …

“This is my boy's health! Talk straight to me!” perspectives on accessible and culturally safe care among Aboriginal and Torres Strait Islander patients of clinical …

P Dalach, R Savarirayan, G Baynam… - International Journal for …, 2021 - Springer
Abstract Background Aboriginal and Torres Strait Islander people do not enjoy equal access
to specialist health services that adequately meet their needs. Clinical genetics services are …

Ethnicity, equity, and access to genetic services—the UK perspective

P Mehta, AK Saggar - Annals of Human Biology, 2005 - Taylor & Francis
The UK is a multi-ethnic, multicultural society with over 300 languages spoken in the capital
(London) alone. This short report explores the implications of a diverse population on health …

What does Australia's investment in genomics mean for public health?

A Belcher, M Mangelsdorf, F McDonald… - Australian and New …, 2019 - Wiley Online Library
The question of who benefits from publicly funded genomics is also important. One of the
basic principles of public health is equity–health for all, not just those who are relatively well …

Exploring the barriers preventing Indigenous Australians from accessing cancer genetic counseling

T Gonzalez, R Harris, R Williams… - Journal of Genetic …, 2020 - Wiley Online Library
Abstract In Australia, individuals of Aboriginal and Torres Strait Islander descent (Indigenous
Australians) have poorer health outcomes than the general population, including higher …

[HTML][HTML] Exploring the cancer risk perception and interest in genetic services among Indigenous people in Queensland, Australia

CM Bernardes, PC Valery, G Garvey - … and New Zealand Journal of Public …, 2014 - Elsevier
Objective The purpose of this study is to explore the levels of interest among Indigenous
people with cancer in identifying cancer risk in their family and seeking genetic …

Inclusion of diverse populations in genomic research and health services: Genomix workshop report

SS Mathew, J Barwell, N Khan, E Lynch… - Journal of Community …, 2017 - Springer
Clinical genetic services and genomic research are rapidly developing but, historically,
those with the greatest need are the least to benefit from these advances. This encompasses …

[PDF][PDF] Better Indigenous Genetic (BIG) Health Services project

R Savarirayan, G Garvey, G Baynam, J McGaughran… - lowitja.org.au
METHODS Governance of the BIG health services project included a majority-Aboriginal
and Torres Strait Islander Project Reference Group and an End-User Group consisting of …

Setting up a community genetic service for families in Walsall at higher genetic risk of infant mortality and morbidity

K Nirantharakumar, T Fowler, K Saunders… - … and Inequalities in …, 2010 - emerald.com
Health inequalities exist between ethnic groups, an important example of this being infant
mortality with babies of mothers born in Pakistan having double and babies of mothers born …