“I didn't sign up for this”: perspectives from persons living with dementia and care partners on challenges, supports, and opportunities to add geriatric neuropalliative …

KL Harrison, SB Garrett, M Halim… - Journal of …, 2022 - content.iospress.com
Background: In the United States, dementia specialty centers affiliated with centers of
excellence for research hold promise as locations to develop innovative, holistic care in care …

Practices, challenges, and opportunities when addressing the palliative care needs of people living with dementia: Specialty memory care provider perspectives

A Bernstein Sideman, KL Harrison… - … Research & Clinical …, 2021 - Wiley Online Library
Introduction Palliative care focuses on reducing suffering and improving quality of life for
individuals with serious illness and their families. In an effort to develop palliative care …

Pragmatic implementation of comprehensive dementia care management: The Cedars‐Sinai CARES Program preliminary data

ZS Tan, N Qureshi, E Spivack… - Journal of the …, 2024 - Wiley Online Library
Abstract Background The United States faces a growing challenge with over 6.5 million
people living with dementia (PLwD). PLwD and their caregivers struggle with cognitive …

[HTML][HTML] Palliative care for persons with late-stage Alzheimer's and related dementias and their caregivers: protocol for a randomized clinical trial

M Toles, C Kistler, FC Lin, M Lynch, K Wessell… - Trials, 2023 - Springer
Background Limited access to specialized palliative care exposes persons with late-stage
Alzheimer's disease and related dementias (ADRD) to burdensome treatment and …

Community-based palliative care consultations: comparing dementia to nondementia serious illnesses

KL Harrison, JH Bull, SB Garrett… - Journal of palliative …, 2020 - liebertpub.com
Background: Little is known about the provision of palliative care to people with dementia
(PWD). Objective: To examine demographic and clinical characteristics of PWD versus …

[HTML][HTML] Design and development of a community-based, interdisciplinary, collaborative dementia care program

D Goldfarb, AM Allen, LE Nisson, DB Petitti… - The American Journal of …, 2022 - Elsevier
Objective To describe the design, development, and baseline characteristics of enrollees of
a home-based, interdisciplinary, dyadic, pilot dementia care program. Design Single-arm …

[PDF][PDF] The Voices of Persons Living With Dementia.

DB Reuben - The American journal of geriatric psychiatry: official …, 2020 - escholarship.org
In the second decade of the 21st century, the impor-tance of the patient voice in designing
and providing healthcare has been increasingly recognized. Initiatives that plan care around …

Staff perspectives of barriers to access and delivery of palliative care for persons with dementia in long-term care

E Hill, MY Savundranayagam… - American Journal of …, 2018 - journals.sagepub.com
Dementia is a syndrome that is progressive, degenerative, and terminal. The palliative care
philosophy aims to maximize quality of life for the dying individual and is both beneficial for …

Dementia care across a tertiary care health system: what exists now and what needs to change

A Leggett, C Connell, L Dubin, R Dunkle… - Journal of the American …, 2019 - Elsevier
Objectives This study explored the process of care for persons living with dementia (PLWDs)
in various care settings across a tertiary care system and considers challenges and …

Improving advanced dementia care: an interprofessional learning framework

D Tolson, I Holmerova, R Macrae - Journal of the American …, 2017 - journals.rcni.com
Abstract The original Palliare Project was completed by a collaboration of seven European
countries. The featured publication (Tolson et al 2017)–an editorial–compresses the findings …