Biobanking and risk assessment: a comprehensive typology of risks for an adaptive risk governance

K Akyüz, G Chassang, M Goisauf, Ł Kozera… - Life Sciences, Society …, 2021 - Springer
Biobanks act as the custodians for the access to and responsible use of human biological
samples and related data that have been generously donated by individuals to serve the …

Being a member of the club: the transnational (self-) governance of networks of biobanks

MT Mayrhofer, B Prainsack - International Journal of Risk …, 2009 - inderscienceonline.com
Biobanks have become one of the core resources for biomedical research. At the same time,
a number of risks associated with processing and storing of biological material and …

Anticipatory governance in biobanking: security and risk management in digital health

D Rychnovská - Science and engineering ethics, 2021 - Springer
Although big-data research has met with multiple controversies in diverse fields, political
and security implications of big data in life sciences have received less attention. This paper …

Biobanks for biomedical research: evolution and future

JA Lecaros - Handbook of bioethical decisions. Volume I: decisions …, 2023 - Springer
For more than two decades, in the era of post-genomics and personalized precision
medicine, biobanks for biomedical research have successfully fostered the development of …

[图书][B] Trust in Biobanking

P Dabrock, J Taupitz, J Ried - 2012 - Springer
Biobanks are promising instruments of biomedical research and are increasingly considered
as essential tools for translational medicine in particular. However, there is concern that the …

Data in question: A survey of European biobank professionals on ethical, legal and societal challenges of biobank research

M Goisauf, G Martin, HB Bentzen, I Budin-Ljøsne… - PloS one, 2019 - journals.plos.org
Biobanks have evolved, and their governance procedures have undergone important
transformations. Our paper examines this issue by focusing on the perspective of the …

Basic principles of biobanking: from biological samples to precision medicine for patients

L Annaratone, G De Palma, G Bonizzi, A Sapino… - Virchows Archiv, 2021 - Springer
The term “biobanking” is often misapplied to any collection of human biological materials
(biospecimens) regardless of requirements related to ethical and legal issues or the …

[图书][B] The ethics of research biobanking

JH Solbakk, S Holm, B Hofmann - 2009 - Springer
This study is the result of an interdisciplinary research collaboration and coproduction
between scholars from eight different countries (Denmark, Iceland, France, Norway …

Legal aspects of biobanking as key issues for personalized medicine and translational exploitation

T Minssen, J Schovsbo - Personalized Medicine, 2014 - Taylor & Francis
This perspective article provides an overview on selected legal aspects of biobanking. It
discusses these issues with a focus on public biobanks in a university setting and the …

Biobanks and individual health related findings: From an obstacle to an incentive

J Lekstutiene, S Holm, E Gefenas - Science and engineering ethics, 2021 - Springer
Despite the benefits biobanks are expected to bring, there have recently been concerns
raised that the public and private non-profit biobanks still prevailing in Europe often fail to …