Patient stakeholder engagement in research: a narrative review to describe foundational principles and best practice activities

JD Harrison, AD Auerbach, W Anderson… - Health …, 2019 - Wiley Online Library
Background Health research is evolving to include patient stakeholders (patients, families
and caregivers) as active members of research teams. Frameworks describing the …

Patients as partners in health research: a scoping review

TL McCarron, F Clement, J Rasiah, C Moran… - Health …, 2021 - Wiley Online Library
Background The role of patient involvement in health research has evolved over the past
decade. Despite efforts to engage patients as partners, the role is not well understood. We …

Patient engagement in research: a systematic review

JP Domecq, G Prutsky, T Elraiyah, Z Wang… - BMC health services …, 2014 - Springer
Background A compelling ethical rationale supports patient engagement in healthcare
research. It is also assumed that patient engagement will lead to research findings that are …

Evaluating patient and stakeholder engagement in research: moving from theory to practice

L Esmail, E Moore, A Rein - Journal of comparative …, 2015 - becarispublishing.com
Despite the growing demand for research that engages stakeholders, there is limited
evidence in the literature to demonstrate its value–or return on investment. This gap …

[HTML][HTML] Defining patient engagement in research: results of a systematic review and analysis: report of the ISPOR patient-centered special interest group

RL Harrington, ML Hanna, EM Oehrlein, R Camp… - Value in Health, 2020 - Elsevier
Objectives Lack of clarity on the definition of “patient engagement” has been highlighted as
a barrier to fully implementing patient engagement in research. This study identified themes …

A rapid realist review of patient engagement in patient-oriented research and health care system impacts: part one

E Zibrowski, T Carr, S McDonald, H Thiessen… - Research Involvement …, 2021 - Springer
Background Patient-oriented research affords individuals with opportunities to genuinely
contribute to health care research as members of research teams. While checklists and …

Researchers, patients, and other stakeholders' perspectives on challenges to and strategies for engagement

A Heckert, LP Forsythe, KL Carman, L Frank… - Research Involvement …, 2020 - Springer
Background There is growing interest in patient and stakeholder engagement in research,
yet limited evidence about effective methods. Since 2012, the Patient-Centered Outcomes …

The experience of patient partners in research: a qualitative systematic review and thematic synthesis

J Lauzon-Schnittka, S Audette-Chapdelaine… - Research involvement …, 2022 - Springer
Context Patient engagement in research consists in involving patients as partners across the
research cycle. This practice has quickly become an international standard, with funding …

Patient and stakeholder engagement in the PCORI pilot projects: description and lessons learned

LP Forsythe, LE Ellis, L Edmundson… - Journal of general …, 2016 - Springer
ABSTRACT BACKGROUND Patients and healthcare stakeholders are increasingly
becoming engaged in the planning and conduct of biomedical research. However, limited …

Patient engagement in Canada: a scoping review of the 'how'and 'what'of patient engagement in health research

E Manafo, L Petermann, P Mason-Lai… - Health research policy …, 2018 - Springer
Background Over the last 10 years, patient engagement in health research has emerged as
the next evolution in healthcare research. However, limited evidence about the clear role …