Quality of life in adolescents with epilepsy, cerebral palsy, and population norms

U Boldyreva, DL Streiner… - … Medicine & Child …, 2020 - Wiley Online Library
Aim To compare:(1) self‐and proxy‐reported quality of life (QoL) in adolescents with
epilepsy, cerebral palsy (CP), both epilepsy and CP, and a representative general …

Quality of life in children with epilepsy: How does it compare with the quality of life in typical children and children with cerebral palsy?

M Mezgebe, GG Akhtar-Danesh, DL Streiner… - Epilepsy & Behavior, 2015 - Elsevier
Our objective was to compare the quality of life (QoL) of children with epilepsy to that of
typical children and children with cerebral palsy (CP). We measured self-and proxy-reported …

Quality of life in childhood epilepsy: what is the level of agreement between youth and their parents?

LH Verhey, DM Kulik, GM Ronen, P Rosenbaum… - Epilepsy & behavior, 2009 - Elsevier
Children and parents evaluate the child's quality of life (QOL) from their own perspectives;
therefore, responses may differ, especially in abstract domains. We examined differences …

Comparative study of the health-related quality of life of children with epilepsy and their parents

E Bompori, D Niakas, I Nakou… - Epilepsy & Behavior, 2014 - Elsevier
Purpose We aimed to evaluate the health-related quality of life (HRQoL) of schoolchildren
with epilepsy and its determinants and the HRQoL of their parents in comparison with those …

Analysis of factors related to low health-related quality of life in children with epilepsy using a self-assessed Japanese version of the KIDSCREEN-52

Y Furuichi, T Sakakibara, S Nezu, K Saeki… - Brain and …, 2021 - Elsevier
Background There is a paucity of studies on self-assessed generic health-related quality of
life (HRQOL) in children with epilepsy. The purpose of this study was to investigate generic …

Self‐reported and parent‐reported quality of life of children and adolescents with new‐onset epilepsy

J Taylor, A Jacoby, GA Baker, AG Marson - Epilepsia, 2011 - Wiley Online Library
Purpose: To investigate the self‐reported quality of life (QOL) of children and adolescents
with new‐onset epilepsy and explore parent's perceptions of their child's QOL and the …

Differences in child versus parent reports of the child's health‐related quality of life in children with epilepsy and healthy siblings

CB Baca, BG Vickrey, RD Hays, SD Vassar… - Value in …, 2010 - Wiley Online Library
Objectives: Self versus proxy perspectives may produce different results that are important
for clinical decision‐making and for assessing outcomes in research studies. We examined …

Quality of life in children with epilepsy and cognitive impairment: a review and a pilot study

C Soria, SE Sabbagh, S Escolano, R Bobet… - Developmental …, 2007 - Taylor & Francis
Various methods have recently been proposed to assess the physical, psychological or
social dimensions of quality of life (QoL) in children with epilepsy (CwE) and their families …

Children's perspective of quality of life in epilepsy

N Fayed, AM Davis, DL Streiner, PL Rosenbaum… - Neurology, 2015 - AAN Enterprises
Objective: To study child mental health, parental support, and social support of children with
epilepsy as these relate to quality of life (QOL) using child self-report, seizure-related …

Behavioral problems, cognitive difficulties and quality of life in children with epilepsy: An analysis of parental concerns

C Soria, S Escolano, S El Sabbagh… - Child …, 2012 - Taylor & Francis
In cognitively impaired or young children with epilepsy, only proxy-report can be used for the
assessment of Quality of Life (QOL) and behavior. The present study aims to propose proxy …