Ongoing Information and Support Needs of Parents of Children with Epilepsy

MC Secco - 2020 - search.proquest.com
The purpose of this research is to gain insight into the ongoing information and support
needs of parents of children with epilepsy. Using descriptive content analysis of text found in …

Exploring the needs and challenges of parents and their children in childhood epilepsy care: a qualitative study

SW Wo, LC Ong, WY Low, PSM Lai - Epilepsy & Behavior, 2018 - Elsevier
Because of the nature of epilepsy, and the unpredictability of seizure recurrence, epilepsy
requires long-term treatment with medications. As a consequence, epilepsy has a negative …

Experiences and needs of parents of young children with active epilepsy: a population-based study

C Jones, P Atkinson, A Memon, L Dabydeen, KB Das… - Epilepsy & Behavior, 2019 - Elsevier
The aim of the study was to gain a comprehensive understanding of the experiences and
needs of parents of young children with epilepsy from a total population sample. The parents …

Talking about epilepsy: challenges parents face when communicating with their child about epilepsy and epilepsy-related issues

S O'Toole, V Lambert, P Gallagher, A Shahwan… - Epilepsy & Behavior, 2016 - Elsevier
The aim of this qualitative study was to explore the challenges that parents of children with
epilepsy experienced when engaging in dialog with their child about epilepsy and epilepsy …

Concerns and needs of children with epilepsy and their parents

AM McNELIS, J Buelow, J Myers… - Clinical Nurse …, 2007 - journals.lww.com
Purpose: Having epilepsy often interferes with a child's and his or her family's quality of life,
but specific concerns have not been explored. The purpose of the study was to explore in …

Meeting the needs of children whose parents have epilepsy

SL Lannon - Journal of Neuroscience Nursing, 1992 - journals.lww.com
Improved treatment, changes in societal attitudes and repeal of restrictive laws have resulted
in more people with epilepsy being able to pursue ordinary lives, including marriage and …

Stressors of caregivers of school-age children with epilepsy and use of community resources

G Saburi - Journal of Neuroscience Nursing, 2011 - journals.lww.com
Childhood epilepsy causes multiple stressors, difficulty in adjustment, and disruptions in
family relations. This study sought to identify stressors of caregivers of school-age children …

Parents' need for information and support following their child's diagnosis of epilepsy

A Cummins - Journal of Children's and Young People's …, 2008 - magonlinelibrary.com
Research on childhood epilepsy suggests that a diagnosis of epilepsy is a challenge for
both the child and parents. Children with epilepsy and their parents are faced with a …

Caregiving in pediatric epilepsy: results of focus groups and implications for research and practice

G Smith, J Wagner, J Andrews, J Austin, M Mueller… - Epilepsy & Behavior, 2014 - Elsevier
The process of caring for youth with epilepsy (YWEs) has been understudied. Previous
research has identified that caregivers of YWEs report increased parenting stress …

Improving outcomes in childhood epilepsy: the role of psychological family factors

E Hennessy - 2019 - cora.ucc.ie
Abstract Paper 1: Objectives: This systematic review 1) charted the relationships between
psychological family factors and psychosocial outcomes in childhood epilepsy, 2) identified …