Aim To present the actions taken by the Scottish Dementia Clinical Research Network
(SDCRN) to comply with Scotland's National Dementia Strategy (SNDS) on patient and …

Scotland's National Dementia Strategy calls for people with dementia and their carers to
give voice to what they see as the priorities for dementia research. We sent questionnaires …

Dementia is a neurodegenerative disorder that can have a severe effect on the quality of life
of individuals with the condition, and can place considerable strain on informal carers and …

Clare Abley, nurse consultant, vulnerable older adults, Newcastle and North Tyneside
Community Health, research associate, Newcastle University and member of the nurses' …

Background The involvement of people with a diagnosis of dementia in patient and public
involvement and engagement (PPIE) in research is an emerging field in the delivery of …

This paper explores the Dementia Enquirers approach to dementia research, and the 10
local projects which have been funded in the first wave of the programme. The paper is …

Background Too often, dementia research is conducted in research silos without thorough
integration and the involvement of people with lived experiences, care professionals and the …

Objectives We aimed to evaluate the impact of patient and public involvement (PPI) at each
stage of the research cycle in a dementia research programme. Design We used monitoring …

Abstract The Scottish Dementia Working Group Research Sub-group is part of the Scottish
Dementia Working Group, an internationally renowned campaigning group of people with …

The Scottish Dementia Working Group Research Sub-group is part of the Scottish Dementia
Working Group, an internationally renowned campaigning group of people with dementia …