Objectives The purpose of this study was to partner with stakeholders to identify gaps in care
for persons living with dementia and their family caregivers and from this list, identify …

Background The inclusion of stakeholders throughout the research process has been
gaining recognition as an approach that can improve the quality and impact of research …

Traditionally, people with dementia and their caregivers are the subjects of research but do
not participate in devising the research. More recently, new models give people with …

Abstract Background The National Institute on Aging, in conjunction with the Department of
Health and Human Services as part of the National Alzheimer's Project Act, convened a …

Background The objective of this paper is to describe the activities, challenges and
mitigation strategies, lessons learned and reflections on the importance of engagement from …

Objective A stakeholder group for persons living with dementia (PLWD) was convened to
support the work of a major US dementia research meeting. The objectives of this …

The involvement of people living with dementia and their carers in research is growing. We
established a mixed stakeholder group, the 'Dementia Care Community', to inform a …

The current article reports the consensus recommendations from individuals living with
dementia and their care partners on priorities for public policy and research funding, which …

OBJECTIVES To engage persons with dementia, friends, family, caregivers, and health and
social care providers to identify and prioritize their questions for research related to living …

Objective Inclusion of patients in research activities has increased in the United States but
no guidelines for inclusion of individuals with cognitive impairment exist. The experiences …