Use of telehealth platforms for delivering supportive care to adults with primary brain tumors and their family caregivers: a systematic review

T Ownsworth, RJ Chan, S Jones, J Robertson… - Psycho …, 2021 - Wiley Online Library
Objective Telehealth platforms have potential utility for providing remote access to
supportive care to people with brain tumour. This systematic review aimed to evaluate the …

Evaluation of a telehealth psychological support intervention for people with primary brain tumour and their family members: Study protocol for a randomised …

T Ownsworth, S Chambers, JF Aitken… - European Journal of …, 2019 - Wiley Online Library
Objective There is a lack of research on interventions that address the specific psychosocial
needs of people with brain tumour and their families. This paper describes the protocol for a …

[HTML][HTML] Neuro-oncology family caregivers' view on keeping track of care issues using eHealth systems: it'sa question of time

FW Boele, CF van Uden-Kraan, K Hilverda… - Journal of Neuro …, 2017 - Springer
Primary brain tumors (PBTs) are rare but have a great impact on both patient and family
caregiver wellbeing. Supporting caregivers can help them to continue their caregiving …

[HTML][HTML] Feasibility and utility of telephone-based psychological support for people with brain tumor: a single-case experimental study

S Jones, T Ownsworth, DHK Shum - Frontiers in oncology, 2015 - frontiersin.org
Rates of psychological distress are high following diagnosis and treatment of brain tumor.
There can be multiple barriers to accessing psychological support, including physical and …

[HTML][HTML] Telemedicine use among caregivers of cancer patients: systematic review

C Marzorati, C Renzi, SW Russell-Edu… - Journal of Medical …, 2018 - jmir.org
Background The number of published studies and systematic reviews examining different
telehealth interventions targeting patients and their effects on patients' well-being and …

Implementing a clinic-based telehealth support service (FamilyStrong) for family caregivers of individuals with grade IV brain tumors

JN Dionne-Odom, GR Williams, PP Warren… - Journal of Palliative …, 2021 - liebertpub.com
Background: Nearly 3 million US family caregivers support someone with cancer. However,
oncology clinic-based service lines that proactively screen, assess, and support cancer …

The effects of SmartCare© on neuro-oncology family caregivers' distress: a randomized controlled trial

FW Boele, JM Weimer, J Proudfoot, AL Marsland… - Supportive Care in …, 2022 - Springer
Purpose Patients with primary malignant brain tumors have high symptom burden and
commonly rely on family caregivers for practical and emotional support. This can lead to …

Feasibility of implementing an electronic social support and resource visualization tool for caregivers in a neuro-oncology clinic

M Reblin, D Ketcher, P Forsyth, E Mendivil… - Supportive care in …, 2018 - Springer
Purpose The goals of this study were to assess the feasibility of a web-based application—
electronic Social Network Assessment Program (eSNAP)—to automate the capture and …

Ethical and clinical challenges delivering group‐based cognitive‐behavioural therapy to adolescents and young adults with cancer using videoconferencing …

UM Sansom‐Daly, CE Wakefield, BC McGill… - Australian …, 2015 - Taylor & Francis
Objective Adolescents and young adults with cancer have poorer psychological outcomes
relative to both younger and older patients. Their distress often peaks at the completion of …

Supportive care needs of people with brain tumours and their carers

M Janda, EG Eakin, L Bailey, D Walker… - Supportive Care in Cancer, 2006 - Springer
Goals of work The diagnosis and treatment of a brain tumour may result in long-term
changes in a patient's functional and social abilities and/or in a greatly reduced life span. A …