Rationale and study protocol of ACQUIRE, a prospective, observational study measuring quality of life, treatment preference and treatment satisfaction of autosomal …
D Joly, J Quinn, S Mokiou, K O'Reilly… - BMC nephrology, 2020 - Springer
Background Autosomal dominant polycystic kidney disease (ADPKD) is considered the most
common inherited renal disease. Patient-Reported Outcomes (PROs) and patient …
common inherited renal disease. Patient-Reported Outcomes (PROs) and patient …
Health-related quality of life across all stages of autosomal dominant polycystic kidney disease
D Eriksson, L Karlsson, O Eklund… - Nephrology Dialysis …, 2017 - academic.oup.com
Background A limited number of studies have assessed health-related quality of life
(HRQoL) in autosomal dominant polycystic kidney disease (ADPKD). Results to date have …
(HRQoL) in autosomal dominant polycystic kidney disease (ADPKD). Results to date have …
The effect of disease severity markers on quality of life in autosomal dominant polycystic kidney disease: a systematic review, meta-analysis and meta-regression
MK Neijenhuis, W Kievit, RD Perrone, JA Sloan… - BMC nephrology, 2017 - Springer
Background Little is known about determinants of quality of life (QoL) in autosomal dominant
polycystic kidney disease (ADPKD). Recent studies suggest that QoL in ADPKD is …
polycystic kidney disease (ADPKD). Recent studies suggest that QoL in ADPKD is …
[HTML][HTML] Patient-Reported Outcomes Measures, Polycystic Kidney Disease Burden, and Outcomes in Autosomal Dominant Polycystic Kidney Disease
Rationale & Objective Using OVERTURE (NCT01430494) study data on patient-perceived
health, health care utilization, and productivity in autosomal dominant polycystic kidney …
health, health care utilization, and productivity in autosomal dominant polycystic kidney …
Psychometric analyses of patient-reported outcome instruments for autosomal dominant polycystic kidney disease
JC Cole, R Cheng, D Oberdhan, HB Krasa… - Value in …, 2013 - valueinhealthjournal.com
Objectives Patient-reported disease burden in Autosomal Dominant Polycystic Kidney
Disease (ADPKD) has not been rigorously documented. This study provides initial …
Disease (ADPKD) has not been rigorously documented. This study provides initial …
FP051 BASELINE RESULTS FROM ACQUIRE: A STUDY MEASURING QUALITY OF LIFE, AND TREATMENT PREFERENCE AND SATISFACTION OF AUTOSOMAL …
D Joly, H Doll, J Sánchez-Covisa… - Nephrology Dialysis …, 2019 - academic.oup.com
METHODS: ACQUIRE (NCT02848521) is an ongoing prospective, observational study
conducted in 7 European countries. Rapidly progressing ADPKD pts (CKD stages 1–3; …
conducted in 7 European countries. Rapidly progressing ADPKD pts (CKD stages 1–3; …
[HTML][HTML] Development of the Autosomal Dominant Polycystic Kidney Disease Impact Scale: a new health-related quality-of-life instrument
D Oberdhan, JC Cole, HB Krasa, R Cheng… - American Journal of …, 2018 - Elsevier
Background The impact of autosomal dominant polycystic kidney disease (ADPKD) on
health-related quality of life (HRQoL) is not well understood due to a lack of instruments …
health-related quality of life (HRQoL) is not well understood due to a lack of instruments …
Quality of life of patients with ADPKD—Toranomon PKD QOL study: cross-sectional study
T Suwabe, Y Ubara, K Mise, M Kawada, S Hamanoue… - BMC nephrology, 2013 - Springer
Background The quality of life (QOL) of patients with autosomal dominant polycystic kidney
disease (ADPKD) has not been investigated well. This study was performed to clarify the …
disease (ADPKD) has not been investigated well. This study was performed to clarify the …
Health-related quality of life (HrQoL) measures in autosomal dominant polycystic kidney disease (ADPKD)
D Oberdhan, HB Krasa, C Schaefer… - Value in …, 2015 - valueinhealthjournal.com
Objectives ADPKD imposes substantial burdens on HRQoL at all stages of the disease. Few
studies have examined disease impacts and symptomatology on HRQoL. This analysis …
studies have examined disease impacts and symptomatology on HRQoL. This analysis …
Understanding the physical and emotional impact of early-stage ADPKD: experiences and perspectives of patients and physicians
A Baker, D King, J Marsh, A Makin, A Carr… - Clinical kidney …, 2015 - academic.oup.com
Background Autosomal dominant polycystic kidney disease (ADPKD) is the most common
hereditary renal disorder; however, at the time this research was conducted, no disease …
hereditary renal disorder; however, at the time this research was conducted, no disease …