Parkinson's disease and deep brain stimulation have an impact on my life: a multimodal study on the experiences of patients and family caregivers

YM Chacón Gámez, F Brugger… - International journal of …, 2021 - mdpi.com
Parkinson's disease (PD) has a large impact on patients' physical and mental health, which
also greatly affects their family caregivers. Deep brain stimulation (DBS) has emerged as an …

Sharing our story individualized and triadic nurse meetings support couples adjustment to living with deep brain stimulation for Parkinson's disease

A Haahr, A Norlyk, EOC Hall, KE Hansen… - … journal of qualitative …, 2020 - Taylor & Francis
Treatment with deep brain stimulation for Parkinson's disease, leads to a rapid improvement
in mobility, which may challenge patients and spouses when adjusting to everyday life. An …

[PDF][PDF] A review of social and relational aspects of deep brain stimulation in Parkinson's disease informed by healthcare provider experiences

E Bell, B Maxwell, MP McAndrews… - Parkinson's …, 2011 - Wiley Online Library
Background. Although the clinical effectiveness of deep brain stimulation (DBS) in
Parkinson's disease is established, there has been less examination of its social aspects …

Mapping the experiences and needs of deep brain stimulation for people with Parkinson's disease and their family members

J Liddle, G Beazley, L Gustafsson, P Silburn - Brain Impairment, 2019 - cambridge.org
BackgroundDeep brain stimulation (DBS) is an effective treatment for the motor symptoms of
Parkinson's disease (PD). The lived experience of people with PD suggests a process of …

Caregivers' burden and deep brain stimulation for Parkinson disease: A systematic review of qualitative studies

F Cavallieri, L Ghirotto, F Sireci… - European Journal of …, 2024 - Wiley Online Library
Background and purpose The impact of subthalamic nucleus deep brain stimulation (STN‐
DBS) on caregivers' burden is understudied. We perform a systematic review and meta …

[HTML][HTML] “DBS means everything–for some time”. Patients' perspectives on daily life with deep brain stimulation for Parkinson's disease

GM Hariz, P Limousin, K Hamberg - Journal of Parkinson's disease, 2016 - ncbi.nlm.nih.gov
Background: Deep brain stimulation (DBS) is an established treatment for Parkinson's
disease. However, patients own perceptions of the impact of DBS on their daily living is not …

“He's back so I'm not alone”: The impact of deep brain stimulation on personality, self, and relationships in Parkinson's disease

CJ Thomson, RA Segrave, E Racine… - Qualitative Health …, 2020 - journals.sagepub.com
Deep brain stimulation (DBS) for Parkinson's disease successfully alleviates motor
symptoms, but unanticipated changes in personality, self, and relationships can occur. Little …

'Being in it together': living with a partner receiving deep brain stimulation for advanced Parkinson's disease–a hermeneutic phenomenological study

A Haahr, M Kirkevold, EOC Hall… - Journal of advanced …, 2013 - Wiley Online Library
haahr a., kirkevold m., hall eoc & østergaard k.(2012)'Being in it together': living with a
partner receiving deep brain stimulation for advanced Parkinson's disease–a hermeneutic …

Patients' experiences of deep brain stimulation for Parkinson's disease: a qualitative systematic review and synthesis

J Mathers, C Rick, C Jenkinson, R Garside, H Pall… - BMJ open, 2016 - bmjopen.bmj.com
Objective To review and synthesise qualitative research studies that have explored patients'
experience of deep brain stimulation (DBS) in advanced Parkinson's disease (PD). Design …

From miracle to reconciliation: a hermeneutic phenomenological study exploring the experience of living with Parkinson's disease following deep brain stimulation

A Haahr, M Kirkevold, EOC Hall… - International Journal of …, 2010 - Elsevier
BACKGROUND: Deep Brain Stimulation for Parkinson's disease is a promising treatment for
patients who can no longer be treated satisfactorily with l-dopa. Deep Brain Stimulation is …