Promoting and advocating for ethical community engagement: Transparency in the community-engaged research spectrum

DJ McMaughan, SMD Grieb, R Kteily-Hawa… - Progress in Community …, 2021 - muse.jhu.edu
Community-engaged research exists on a continuum from less engaged (like outreach and
advisory committees) to the more collaborative and fully engaged (like shared leadership) …

Public involvement in health research: what does 'good'look like in practice?

K Liabo, K Boddy, S Bortoli, J Irvine, H Boult… - Research involvement …, 2020 - Springer
Plain English summary Background Patient and public involvement means researchers
working with members of the public, patients or carers to jointly plan and carry out research …

A framework for community and stakeholder engagement: experiences from a multicenter study in Southern Africa

R Musesengwa, MJ Chimbari… - Journal of Empirical …, 2018 - journals.sagepub.com
Community and stakeholder engagement (CSE) are central to conducting multicenter health
research. Multicenter studies are, however, considerably more complex because they …

Facilitating and supporting the engagement of patients, families and caregivers in research: the “Ottawa model” for patient engagement in research

S Vanderhout, S Nicholls, Z Monfaredi… - Research involvement …, 2022 - Springer
Background Patient engagement is increasingly being recognized as a critical component of
health research; however, institutional models for building infrastructure and capacity for …

[HTML][HTML] Defining patient engagement in research: results of a systematic review and analysis: report of the ISPOR patient-centered special interest group

RL Harrington, ML Hanna, EM Oehrlein, R Camp… - Value in Health, 2020 - Elsevier
Objectives Lack of clarity on the definition of “patient engagement” has been highlighted as
a barrier to fully implementing patient engagement in research. This study identified themes …

How do public health professionals view and engage with research? A qualitative interview study and stakeholder workshop engaging public health professionals and …

P Van Der Graaf, LF Forrest, J Adams, J Shucksmith… - BMC public health, 2017 - Springer
Background With increasing financial pressures on public health in England, the need for
evidence of high relevance to policy is now stronger than ever. However, the ways in which …

Community experiences and perceptions of clinical and translational research and researchers

JS Skinner, NA Williams, A Richmond… - Progress in community …, 2018 - muse.jhu.edu
Background: Engaging communities in research is increasingly recognized as critical to
translation of research into improved health outcomes. Our objective was to understand …

The Bidirectional Engagement and Equity (BEE) Research Framework to Guide Community–Academic Partnerships: Developed From a Narrative Review and …

J Cunningham‐Erves, T Mayo‐Gamble… - Health …, 2024 - Wiley Online Library
Background The engagement of community partners in equitable partnerships with
academic teams is necessary to achieve health equity. However, there is no standardized …

The continuum of community engagement in research: a roadmap for understanding and assessing progress

KD Key, D Furr-Holden, EY Lewis… - Progress in community …, 2019 - muse.jhu.edu
Background: The past two decades have been marked by increased community involvement
in the research process. Community-engaged research (CEnR) is increasingly promoted in …

Future directions for patient engagement in research: a participatory workshop with Canadian patient partners and academic researchers

AM Chudyk, R Stoddard, TA Duhamel… - Health Research Policy …, 2024 - Springer
Background Patient engagement in research (also commonly referred to as patient or
patient and public involvement in research) strives to transform health research wherein …