Privacy protections to encourage use of health-relevant digital data in a learning health system

D McGraw, KD Mandl - NPJ digital medicine, 2021 - nature.com
Abstract The National Academy of Medicine has long advocated for a “learning healthcare
system” that produces constantly updated reference data during the care process. Moving …

Rethinking patient data privacy in the era of digital health

L Bari, DP O'Neill - Health Affairs Forefront, 2019 - healthaffairs.org
Over the past 10 years, US health care has gradually shifted toward digital record keeping in
the professional realm—the world of hospitals, health plans, and physician practices. That …

Harnessing the power of synthetic data in healthcare: innovation, application, and privacy

M Giuffrè, DL Shung - NPJ digital medicine, 2023 - nature.com
Data-driven decision-making in modern healthcare underpins innovation and predictive
analytics in public health and clinical research. Synthetic data has shown promise in finance …

[HTML][HTML] Privacy and security in the era of digital health: what should translational researchers know and do about it?

BL Filkins, JY Kim, B Roberts, W Armstrong… - American journal of …, 2016 - ncbi.nlm.nih.gov
The rapid growth in the availability and incorporation of digital technologies in almost every
aspect of our lives creates extraordinary opportunities but brings with it unique challenges …

Health policy and privacy challenges associated with digital technology

D Grande, XL Marti, R Feuerstein-Simon… - JAMA network …, 2020 - jamanetwork.com
Importance Digital technology is part of everyday life. Digital interactions generate large
amounts of data that can reveal information about the health of individual consumers (the …

For the record: protecting electronic health information

National Research Council, Division on Engineering… - 1997 - books.google.com
When you visit the doctor, information about you may be recorded in an office computer.
Your tests may be sent to a laboratory or consulting physician. Relevant information may be …

Biomedical data privacy: problems, perspectives, and recent advances

BA Malin, KE Emam, CM O'Keefe - Journal of the American …, 2013 - academic.oup.com
The notion of privacy in the healthcare domain is at least as old as the ancient Greeks.
Several decades ago, as electronic medical record (EMR) systems began to take hold, the …

[HTML][HTML] Global healthcare fairness: We should be sharing more, not less, data

KP Seastedt, P Schwab, Z O'Brien, E Wakida… - PLOS Digital …, 2022 - journals.plos.org
The availability of large, deidentified health datasets has enabled significant innovation in
using machine learning (ML) to better understand patients and their diseases. However …

Patients' willingness to share digital health and non-health data for research: a cross-sectional study

E Seltzer, J Goldshear, SC Guntuku, D Grande… - BMC Medical Informatics …, 2019 - Springer
Background Patients generate large amounts of digital data through devices, social media
applications, and other online activities. Little is known about patients' perception of the data …

Big data, big tech, and protecting patient privacy

IG Cohen, MM Mello - Jama, 2019 - jamanetwork.com
The market for patient data has never been more active. Technology companies, from
startups to giants, are eagertoaccesselectronichealthrecord (EHR) datatobuild the next …