Learning to live with Parkinson's disease in the family unit: an interpretative phenomenological analysis of well-being

LJ Smith, RL Shaw - Medicine, Health Care and Philosophy, 2017 - Springer
We investigated family members' lived experience of Parkinson's disease (PD) aiming to
investigate opportunities for well-being. A lifeworld-led approach to healthcare was adopted …

Letting nature take its course: A qualitative exploration of the illness and adjustment experiences of Hong Kong Chinese people with Parkinson's disease

JYY Kwok, JJ Lee, M Auyeung… - Health & social care …, 2020 - Wiley Online Library
Parkinson's disease (PD) is a chronic condition that results in not only physical deterioration
but also a spectrum of psychosocial outcomes that demand continuous adjustment and …

The experience of living with Parkinson's disease: An interpretative phenomenological analysis case study

N Bramley, V Eatough - Psychology & Health, 2005 - Taylor & Francis
What are the lived experiences of an individual with a chronic degenerative disorder? The
aim of this study is to address this question by exploring one individual's personal …

Improving self‐management for persons with Parkinson's disease through education focusing on management of daily life: Patients' and relatives' experience of the …

C Hellqvist, N Dizdar, P Hagell, C Berterö… - Journal of Clinical …, 2018 - Wiley Online Library
Aims and objective To identify and describe experiences valuable for managing daily life
after participation in the NPS self‐management intervention. The second part was to explore …

'Living Well with Parkinson's': evaluation of a programme to promote self‐management

H Mulligan, G Arps, N Bancroft… - Journal of Nursing …, 2011 - Wiley Online Library
mulligan h, arps g, bancroft n, mountfort r & polkinghorne a (2011) Journal of Nursing and
Healthcare of Chronic Illness3, 222–233 'Living Well with Parkinson's': evaluation of a …

Self‐Management Components as Experienced by People with Parkinson's Disease and Their Carers: A Systematic Review and Synthesis of the Qualitative …

R Tuijt, A Tan, M Armstrong, J Pigott, J Read… - Parkinson's …, 2020 - Wiley Online Library
Background. Self‐management strategies are important in healthcare for people with
Parkinson's to improve daily living. There is limited evidence on effectiveness in Parkinson's …

Compound impact of cognitive and physical decline: A qualitative interview study of people with Parkinson's and cognitive impairment, caregivers and professionals

JS Pigott, N Davies, E Chesterman, J Read… - Health …, 2024 - Wiley Online Library
Background Cognitive impairment is common in Parkinson's disease and is associated with
poorer quality of life and increased caregiver distress, but little qualitative information is …

Finding meaning and purpose: a framework for the self-management of neurological conditions

S Kılınç, H Erdem, R Healey, J Cole - Disability and Rehabilitation, 2022 - Taylor & Francis
Purpose Self-management has been proposed as the way forward in improving health
outcomes for people with neurological conditions; yet the experience and meaning of self …

Quality of life and living with Parkinson's disease: a qualitative exploration within an Irish context

I Cassidy, O Doody, M Richardson, P Meskell - BMC neurology, 2024 - Springer
Background Parkinson's disease is incurable, and the rate of progression varies meaning
that people face a long future with an unpredictable condition that can significantly influence …

Perceptions and meanings of living with Parkinson's disease: an account of caregivers lived experiences

SK Bhasin, IU Bharadwaj - … journal of qualitative studies on health …, 2021 - Taylor & Francis
Purpose: Current study looked into caregiving process of those dealing with family members
suffering from Parkinson's disease, within the changing social milieu in India. It aimed to …