People with Parkinson's disease: what symptoms do they most want to improve and how does this change with disease duration?

RJ Port, M Rumsby, G Brown… - Journal of …, 2021 - content.iospress.com
Background: Parkinson's disease (PD) is a neurodegenerative condition with a diverse and
complex pattern of motor and non-motor symptoms which change over time with disease …

Continuity challenges of Parkinson's disease in middle life

B Habermann - Journal of Neuroscience Nursing, 1999 - search.proquest.com
This interpretive study explored the experience of having Parkinson's disease (PD) in middle
life. The researcher examined how persons with PD (N= 16) coped with challenges to their …

Influencing factors when living with Parkinson's disease: A cross‐sectional study

L Ambrosio, MC Portillo… - Journal of Clinical …, 2019 - Wiley Online Library
Aims and objectives To identify the personal‐and disease‐related factors that are
associated with living with Parkinson's disease. Background Living with Parkinson's disease …

Coping with cognitive impairment in people with Parkinson's disease and their carers: a qualitative study

RA Lawson, D Collerton, JP Taylor, DJ Burn… - Parkinson's …, 2018 - Wiley Online Library
Cognitive impairment is common in Parkinson's disease (PD). However, the psychosocial
impact of living and coping with PD and cognitive impairment in people with PD and their …

Core elements to understand and improve coping with Parkinson's disease in patients and family carers: a focus group study

MV Navarta‐Sánchez, N Caparrós… - Journal of Advanced …, 2017 - Wiley Online Library
Aims The aim of this study were:(1) To explore the meaning that coping with Parkinson's
disease has for patients and family carers;(2) To suggest the components of an intervention …

Stopped within a track: embodied experiences of late-stage Parkinson's disease

H Sunvisson - International Journal of Qualitative Studies on …, 2006 - Taylor & Francis
Based on a phenomenological understanding of humans as situated and intentional beings,
this study explored experience of late-stage Parkinson's disease. A woman aged 72, in the …

[HTML][HTML] Towards proactive active living: patients with Parkinson's disease experience of a multidisciplinary intensive rehabilitation treatment

A Giardini, A Pierobon, S Callegari… - Eur J Phys Rehabil …, 2017 - minervamedica.it
BACKGROUND: Non-pharmacological approaches to PD disease management seem to be
a growing and promising field of investigation. Indeed interesting new perspectives are …

“I'm still me–I'm still here!” Understanding the person's sense of self in the provision of self-management support for people with progressive neurological long-term …

ST Kulnik, L Hollinshead, F Jones - Disability and Rehabilitation, 2019 - Taylor & Francis
Purpose: There is increasing interest in tailoring self-management support, but little detail is
available on the relevance and impact of such approaches for people with progressive …

Living with Parkinson's disease—managing identity together

KS Roger, MI Medved - … Journal of Qualitative Studies on Health …, 2010 - Taylor & Francis
The specific aim of this paper is to discuss how individuals living with Parkinson's disease
and their main family supports perceive communications with each other, with a focus on …

Patients' and caregivers' experiences of the impact of Parkinson's disease on health status

H Chiong-Rivero, GW Ryan, C Flippen… - Patient related …, 2011 - Taylor & Francis
Background: Parkinson's disease (PD) is a neurodegenerative disease that significantly
affects patients' quality of life. The myriad complexities of the disease, including its nonmotor …