Parkinson's disease as a model for psychosocial issues in chronic neurodegenerative disease.

MS Groves, DV Forrest - Advances in neurology, 2005 - europepmc.org
Throughout the course of PD, opportunities abound for psychosocial interventions that can
improve a patient's quality of life. The psychosocial challenges accompanying PD vary by …

The subjective experience of Parkinson's disease: a qualitative study in 60 people with mild to moderate Parkinson's in 11 European countries

RK Merritt, S Hotham, L Graham… - European Journal of …, 2018 - kar.kent.ac.uk
Objective: To describe the experience of being diagnosed and living with mild to moderate
Parkinson's disease (PD). Method: Semi-structured in-depth interviews with people with …

[HTML][HTML] Management, levels of support, quality of life, and social inclusion in Parkinson's disease: interventions, innovation, and practice development

MC Portillo, A Haahr, MV Navarta-Sánchez - Parkinson's disease, 2021 - ncbi.nlm.nih.gov
Parkinson's disease (PD) is the second most common neurodegenerative disorder
worldwide with a prevalence of 1% in populations over 60 years of age in developed …

Multiple factors, including non-motor impairments, influence decision making with regard to exercise participation in Parkinson's disease: a qualitative enquiry

C O'Brien, L Clemson, CG Canning - Disability and rehabilitation, 2016 - Taylor & Francis
Purpose: To explore how the meaning of exercise and other factors interact and influence
the exercise behaviour of individuals with Parkinson's disease (PD) enrolled in a 6-month …

[HTML][HTML] Promoting self-care in nursing encounters with persons affected by long-term conditions—a proposed model to guide clinical care

C Hellqvist - International journal of environmental research and …, 2021 - mdpi.com
Background: Nursing interventions for persons affected by long-term conditions should focus
on providing support to enhance the ability to manage disease in everyday life. Many clinical …

“How can I still be me?”: Strategies to maintain a sense of self in the context of a neurological condition

K Roger, M Wetzel, S Hutchinson… - … journal of qualitative …, 2014 - Taylor & Francis
The Living with a Neurological Condition (LINC) study was part of the National Population
Health Study of Neurological Conditions conducted in Canada. This article describes …

[PDF][PDF] Parkinson's narratives: Onset experiences and perceived benefits of preferred physical activity

S Burgess, X Rasmusson - Advances in Social Sciences …, 2016 - researchgate.net
Background: Parkinson's disease (PD) is a relatively common brain-based movement
disorder and there are many experimental studies illustrating the wide ranging effects of …

Living with advanced Parkinson's disease: a constant struggle with unpredictability

A Haahr, M Kirkevold, EOC Hall… - Journal of advanced …, 2011 - Wiley Online Library
haahr a., kirkevold m., hall eoc & østergaard k.(2011) Living with advanced Parkinson's
disease: a constant struggle with unpredictability. Journal of Advanced Nursing 67 (2), 408 …

“You plan, but you never know”–participation among people with different levels of severity of Parkinson's disease

B Thordardottir, MH Nilsson, S Iwarsson… - Disability and …, 2014 - Taylor & Francis
Purpose: The aim of this study was to improve our understanding of important aspects of
participation in everyday life for people with different levels of severity of Parkinson's disease …

Understanding the experience and perspectives of Parkinson's disease patients' caregivers

TK Walga - Rehabilitation Research and Practice, 2019 - Wiley Online Library
This research sets out to explore, uncover, and understand the experiences and
perspectives of people who care for patients with Parkinson's disease (PD). To this end, 20 …