In October 2017, the National Institute on Aging (NIA) convened the National Research
Summit on Care, Services and Supports for Persons with Dementia and their Caregivers …

Dear editors, We read with interest the recent article regarding the lack of inclusion of people
who lack capacity in trials:'Protection by exclusion? The (lack of) inclusion of adults who lack …

Outcome measures for embedded pragmatic clinical trials (ePCTs) should reflect the lived
experience of people living with dementia (PLWD) and their caregivers, yet patient‐and …

Clinical trials for Alzheimer's disease (AD) are slower to enroll study participants, take longer
to complete, and are more expensive than trials in most other therapeutic areas. The …

Background Many interventions improve care and outcomes for people with Alzheimer's
Disease and related dementias (ADRD), yet are never disseminated. Pragmatic trials …

Background: We aimed to assess why carers seek participation for their relatives in clinical
trials of Alzheimer's disease (AD) medications, and to assess carer impressions of the value …

Successful caregiver interventions accomplish two goals. One, they address the pragmatics
of care provision by educating caregivers about the illness of the care recipient, associated …

Introduction Patient engagement is important when developing health guidelines to ensure
high-quality and patient-centred recommendations. However, patient engagement in …

This study addresses the importance of recruiting Korean American family caregivers in
dementia caergiving research. We reviewed published studies conducted with Korean …

Background Alzheimer's disease (AD) research progress is impeded due to participant
recruitment challenges. This study seeks to better understand, from the perspective of …