Background: There is a pressing need to increase enrollment and representation in
Alzheimer's disease and related dementia (ADRD) research. Current recruitment …

Objectives We aimed to evaluate the impact of patient and public involvement (PPI) at each
stage of the research cycle in a dementia research programme. Design We used monitoring …

Many health and social care research studies report difficulties recruiting sufficient numbers
of participants, adding to time and money expenditures and potentially jeopardizing the …

Background Patient and public involvement/engagement in research on dementia is not
new, but it is becoming increasingly common. The objective of this study was to describe …

Abstract Introduction The Alzheimer Society embarked on a project to improve ways that the
60 provincial and local Societies in Canada can work with local researchers to support …

Background Join Dementia Research (JDR) is a national research register that supports
members of the public, with and without dementia to volunteer to be contacted about all …

Background Join Dementia Research is a United Kingdom-wide service that leverages
advances in consumer technologies and data sharing to bring people interested in research …

Objective To share the challenges of recruiting people with dementia to studies, using
experiences from one recently completed trial as an exemplar. Background Research …

In this relatively new field, methods that allow meaningful engagement are being iteratively
developed. Greater community and patient engagement will be a prerequisite for increasing …

INTRODUCTION Recruitment of sufficient and diverse participants into clinical research for
Alzheimer's disease and related dementias remains a formidable challenge. The primary …