A Systematic Review of Dementia Research Priorities

M Ghosh, P Chejor, M Baker… - Journal of Geriatric …, 2024 - journals.sagepub.com
Introduction Patient involvement is a critical component of dementia research priority-setting
exercises to ensure that research benefits are relevant and acceptable to those who need …

Dutch Brain Research Registry for study participant recruitment: design and first results

MD Zwan, WM van der Flier, S Cleutjens… - … Research & Clinical …, 2021 - Wiley Online Library
Abstract Introduction The Dutch Brain Research Registry aims to facilitate online recruitment
of participants for brain disease studies. Methods Registrants were primarily recruited …

The cost of recruiting Alzheimer's disease caregivers for research

BA Tarlow, DF Mahoney - Journal of Aging and Health, 2000 - journals.sagepub.com
Objectives: This study examined the cost and outcomes associated with multiple recruitment
strategies used to enroll participants in an Alzheimer's disease (AD) caregiver study …

Advance planning for research participation: Time to translate this innovation into practice

N Ries, B Johnston, YH Jeon… - … Journal on Ageing, 2023 - Wiley Online Library
Objectives Advance planning for research is a process that involves thinking about,
discussing and expressing preferences for taking part in research during future periods of …

Recruitment into dementia studies: Experiences of researchers using the Join Dementia Research register.

M Karagiannidou, M Stevens… - … Journal of Geriatric …, 2022 - search.ebscohost.com
Key points: Dementia studies often struggle to recruit research participants. Volunteer
registers can potentially help facilitate participant recruitment. Join Dementia Research …

[HTML][HTML] Engaging multi-stakeholder perspectives to identify dementia care research priorities

NK Patel, SS Masoud, K Meyer, AV Davila… - Journal of Patient …, 2021 - Springer
Objectives The purpose of this study was to partner with stakeholders to identify gaps in care
for persons living with dementia and their family caregivers and from this list, identify …

Recruiting older adults with dementia for neuroimaging research: barriers and solutions

S Atalla, K Wright, A Anderson, KO Moss… - Innovation in …, 2019 - ncbi.nlm.nih.gov
Recruiting participants with dementia for magnetic resonance imaging (MRI) research is
prone to inherent barriers including caregiver schedules, mistrust, transportation, expertise …

Involving patients and the public in research

E Darling, MA Parra - Nurse Researcher, 2013 - journals.rcni.com
Aim To present the actions taken by the Scottish Dementia Clinical Research Network
(SDCRN) to comply with Scotland's National Dementia Strategy (SNDS) on patient and …

[HTML][HTML] A new model for general practice-led, regional, community-based, memory clinics

R Disler, A Pascoe, H Anderson, E Piejko, A Asaid… - BMC Primary …, 2022 - Springer
Background Dementia is a major international health issue with high impact on the patient,
relatives, and broader society. Routine screening for dementia is limited, despite known …

Participation of persons with dementia and their caregivers in research

L Frank, LA Jennings, RC Petersen… - Journal of the …, 2021 - Wiley Online Library
Abstract Background The National Institute on Aging, in conjunction with the Department of
Health and Human Services as part of the National Alzheimer's Project Act, convened a …