Key points: Dementia studies often struggle to recruit research participants. Volunteer
registers can potentially help facilitate participant recruitment. Join Dementia Research …

Aim To describe the development of a dementia research registry, outlining the conceptual,
practical and ethical challenges, and to report initial experiences of recruiting people with …

In this article the authors discuss their study investigating the factors motivating patients' and
carers' participation in dementia research. The authors adapted a tested theoretical model …

Objective Inclusion of patients in research activities has increased in the United States but
no guidelines for inclusion of individuals with cognitive impairment exist. The experiences …

Background Low participation in research is one of the key challenges to advancing
understanding of dementia, and improving the care and treatment of those who live with this …

Participatory approaches are increasingly required and used in research. In this review, we
examined the impact (benefits and disadvantages) of participatory dementia research on …

Background Patient and public involvement/engagement in research on dementia is not
new, but it is becoming increasingly common. The objective of this study was to describe …

Many health and social care research studies report difficulties recruiting sufficient numbers
of participants, adding to time and money expenditures and potentially jeopardizing the …

Scotland's National Dementia Strategy calls for people with dementia and their carers to
give voice to what they see as the priorities for dementia research. We sent questionnaires …

Aim. The aim of this paper was to explore a range of strategies that were used to enable
older people with dementia to become actively engaged in research 'with'rather than …