eTRIO trial: study protocol of a randomised controlled trial of online education modules to facilitate effective family caregiver involvement in oncology

I Juraskova, R Laidsaar-Powell, R Keast, P Schofield… - BMJ open, 2021 - bmjopen.bmj.com
Objective Informal family caregivers play a crucial role in cancer care. Effective caregiver
involvement in cancer care can improve both patient and caregiver outcomes. Despite this …

[HTML][HTML] Efficacy of a telephone outcall program to reduce caregiver burden among caregivers of cancer patients [PROTECT]: a randomised controlled trial

L Heckel, KM Fennell, J Reynolds, A Boltong, M Botti… - BMC cancer, 2018 - Springer
Background Informal caregivers provide extended support to people with cancer but they
receive little support from the health care system to assist them in their caring role. The aim …

Family caregiving for cancer patients: the state of the literature and a direction for research to link the informal and formal care systems to improve quality and …

CW Given - Seminars in oncology nursing, 2019 - Elsevier
Objectives Based on recent shifts in reimbursement for cancer treatment from fee-for-service
to bundled and value-based payment, this concluding article summarizes data from these …

What are we doing to support informal caregivers? A scoping review of caregiver education programs in cancer care

J Papadakos, D Samoil, B Umakanthan… - Patient Education and …, 2022 - Elsevier
Objectives The cancer system is experiencing a rise in cancer prevalence, a workforce
shortage, and is resource-stretched. In this environment, informal caregivers (unpaid family …

Access for cancer caregivers to education and support for shared decision making (ACCESS) intervention: a cluster cross-over randomised clinical trial

DP Oliver, K Washington, J Benson… - BMJ Supportive & …, 2024 - spcare.bmj.com
Objectives The purpose of this study was to test an intervention named ACCESS (Access for
Cancer Caregivers to Education and Support for Shared Decision Making). The intervention …

An online intervention to improve oncology health professional self-efficacy in communicating with carers: Hybrid effectiveness-implementation evaluation of the …

R Laidsaar-Powell, S Giunta, P Butow, S Turner… - Patient education and …, 2024 - Elsevier
Objectives Many oncology health professionals (HPs) report communicating with carers as
complex; and receive limited carer-relevant training. We developed an online HP education …

A caregiver educational program improves quality of life and burden for cancer patients and their caregivers: a randomised clinical trial

B Belgacem, C Auclair, MC Fedor, D Brugnon… - European Journal of …, 2013 - Elsevier
Purpose of the research The French setting, including laws and guidelines, advocates
greater involvement of informal caregivers in the care of cancer patients to protect the …

Development of a communication and health literacy curriculum: optimizing the informal cancer caregiver role

E Wittenberg, J Goldsmith, TA Parnell - Psycho‐Oncology, 2020 - Wiley Online Library
Objective The aim of this study was to develop learning objectives and identify content for a
core communication and health literacy curriculum designed to optimize the role of informal …

Family caregiver communication in oncology: advancing a typology

J Goldsmith, E Wittenberg, CS Platt… - Psycho …, 2016 - Wiley Online Library
Objectives The quality of communication between the patient and family caregiver impacts
quality of life and well‐being for the two; however, providers have few tools to understand …

[HTML][HTML] The challenges of recruiting cancer patient/caregiver dyads: informing randomized controlled trials

L Heckel, KM Gunn, PM Livingston - BMC medical research methodology, 2018 - Springer
Background Family members are increasingly involved in the care of cancer patients,
however many are not prepared for this challenging role. Intervention-based studies are …