The global role of patients, advocates and caregivers in rare diseases
M Nori, D Fisher-Vance, L Wuerth, R Colenso… - Future Rare …, 2023 - Future Medicine
Despite over 7000 known rare diseases, reliable information regarding their prevalence,
history and treatment options is scarce. To address this gap, patients, advocates, and …
history and treatment options is scarce. To address this gap, patients, advocates, and …
The Global Role of Patients, Advocates and Caregivers in Rare Diseases
M Nori, D Fisher-Vance, L Wuerth, R Colenso… - Future Rare …, 2022 - Taylor & Francis
Despite over 7000 known rare diseases, reliable information regarding their prevalence,
history and treatment options is scarce. To address this gap, patients, advocates, and …
history and treatment options is scarce. To address this gap, patients, advocates, and …