The development of the PlexiQoL: A patient‐reported outcome measure for adults with neurofibromatosis type 1‐associated plexiform neurofibromas

A Heaney, J Wilburn, M Rouse… - … Genetics & Genomic …, 2020 - Wiley Online Library
Background To develop and validate a patient‐reported outcome (PRO) measure of quality
of life (QoL), specific to patients with Neurofibromatosis Type 1 (NF1)‐associated plexiform …

The development of the PlexiQoL: A patient-reported outcome measure for adults with neurofibromatosis type 1-associated plexiform neurofibromas

A Heaney, J Wilburn, M Rouse… - Molecular genetics …, 2020 - pubmed.ncbi.nlm.nih.gov
Background To develop and validate a patient-reported outcome (PRO) measure of quality
of life (QoL), specific to patients with Neurofibromatosis Type 1 (NF1)-associated plexiform …

[HTML][HTML] The development of the PlexiQoL: A patient‐reported outcome measure for adults with neurofibromatosis type 1‐associated plexiform neurofibromas

A Heaney, J Wilburn, M Rouse… - Molecular Genetics & …, 2020 - ncbi.nlm.nih.gov
Background To develop and validate a patient‐reported outcome (PRO) measure of quality
of life (QoL), specific to patients with Neurofibromatosis Type 1 (NF1)‐associated plexiform …

The development of the PlexiQoL: A patient‐reported outcome measure for adults with neurofibromatosis type 1‐associated plexiform neurofibromas.

A Heaney, J Wilburn, M Rouse… - Molecular Genetics …, 2020 - search.ebscohost.com
Background: To develop and validate a patient‐reported outcome (PRO) measure of quality
of life (QoL), specific to patients with Neurofibromatosis Type 1 (NF1)‐associated plexiform …

The development of the PlexiQoL: A patient-reported outcome measure for adults with neurofibromatosis type 1-associated plexiform neurofibromas.

A Heaney, J Wilburn, M Rouse… - Molecular Genetics & …, 2020 - europepmc.org
Background To develop and validate a patient-reported outcome (PRO) measure of quality
of life (QoL), specific to patients with Neurofibromatosis Type 1 (NF1)-associated plexiform …

The development of the PlexiQoL: A patient-reported outcome measure for adults with neurofibromatosis type 1-associated plexiform neurofibromas

A Heaney, J Wilburn, M Rouse… - Molecular Genetics …, 2020 - pure.johnshopkins.edu
Background: To develop and validate a patient-reported outcome (PRO) measure of quality
of life (QoL), specific to patients with Neurofibromatosis Type 1 (NF1)-associated plexiform …

The development of the PlexiQoL: A patient‐reported outcome measure for adults with neurofibromatosis type 1‐associated plexiform neurofibromas

A Heaney, J Wilburn, M Rouse… - Molecular Genetics …, 2020 - search.proquest.com
Background To develop and validate a patient‐reported outcome (PRO) measure of quality
of life (QoL), specific to patients with Neurofibromatosis Type 1 (NF1)‐associated plexiform …