Exploring Parental Involvement in Rare Disease Research and Advocacy

L Jamal - 2017 - jscholarship.library.jhu.edu
As patient engagement in research becomes increasingly common, it has grown important
to develop best practices for its use. One aspect of patient engagement that remains …

Exploring Parental Involvement in Rare Disease Research and Advocacy

L Jamal - 2017 - jscholarship.library.jhu.edu
As patient engagement in research becomes increasingly common, it has grown important
to develop best practices for its use. One aspect of patient engagement that remains …