Working with uncertainty: A grounded theory study of health-care professionals' experiences of working with children and adolescents with chronic fatigue syndrome

MR Marks, JC Huws… - Journal of Health …, 2016 - journals.sagepub.com
… A qualitative analysis of semi-structured interviews with … working in two National Health
Service (NHS) organisations in … either chronic pain or CFS/ME highlighted that different specialist

Primary healthcare provision and Chronic Fatigue Syndrome: a survey of patients' and General Practitioners' beliefs

MA Thomas, AP Smith - BMC Family Practice, 2005 - Springer
… those in areas without specialised services. This suggests that … to the UK as a whole. To
further support this, data from the … to the past experiences of the research panel patients and the …

DecodeME: community recruitment for a large genetics study of myalgic encephalomyelitis/chronic fatigue syndrome

A Devereux-Cooke, S Leary, SJ McGrath, E Northwood… - Bmc neurology, 2022 - Springer
study, comparing participants’ genotypes with those from UK … In 2012, the CFS/ME Research
Collaborative (CMRC) was … criteria applied in this study although NHS diagnosis is typically …

[HTML][HTML] Paediatric chronic fatigue syndrome patients' and parents' perceptions of recovery

MR Harland, RM Parslow, N Anderson… - BMJ Paediatrics …, 2019 - ncbi.nlm.nih.gov
… through a single specialist paediatric CFS/ME service. Data were … /carers to a qualitative
study with three research questions: (1… to the whole of the UK. Fewer males were recruited 5 and …

Exploring the lived experiences of UK university students with ME/CFS: An interpretative phenomenological analysis

F Waite - 2020 - dissertations.gla.ac.uk
Research regarding students with myalgic encephalomyelitis (ME)/Chronic Fatigue Syndrome
(CFS) has been limited in comparison to the volume of research that has been conducted …

Challenges of nurse delivery of psychological interventions for long-term conditions in primary care: a qualitative exploration of the case of chronic fatigue syndrome …

S Peters, A Wearden, R Morriss, CF Dowrick… - Implementation …, 2011 - Springer
… A qualitative study nested within a randomised controlled … CBT for chronic fatigue [23], though
not necessarily for CFS/ME. … trusts in the northwest of England. Primary care practices were …

Quality and acceptability of patient-reported outcome measures used in chronic fatigue syndrome/myalgic encephalomyelitis (CFS/ME): a systematic review

KL Haywood, S Staniszewska, S Chapman - Quality of life research, 2012 - Springer
… exist between what is measured in research and how patients define their experience of …
UK’s National Health Service [4] and other health care systems, and in health services research

Activity patterns in response to symptoms in patients being treated for chronic fatigue syndrome: An experience sampling methodology study.

R Band, C Barrowclough, K Caldwell, R Emsley… - Health …, 2017 - psycnet.apa.org
… -three adults with CFS were recruited from UK CFS services. … a clinical diagnosis of CFS/ME
(Chronic fatigue syndrome/ … UK National Health Service (NHS) CFS/ME services; the final …

[HTML][HTML] … exercise therapy guided self-help trial for patients with chronic fatigue syndrome (GETSET): protocol for a randomized controlled trial and interview study

LV Clark, P McCrone, D Ridge… - JMIR research …, 2016 - researchprotocols.org
… is set within 2 specialist CFS/ME services in the South of England. … to patients diagnosed
as having CFS/ME in specialist secondary … We will undertake a nested qualitative study with a …

Long Covid at the crossroads: Comparisons and lessons from the treatment of patients with myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS)

J Hunt, C Blease, KJ Geraghty - Journal of Health …, 2022 - journals.sagepub.com
… may remain undiagnosed (CFS/ME Working Group, 2002). … Although our analysis has
focussed largely upon the UK, it is … ME Association (2020b) NHS England and Department of …