The new genetics and its consequences for family, kinship, medicine and medical genetics

K Finkler, C Skrzynia, JP Evans - Social science & medicine, 2003 - Elsevier
… , especially in view of the uncertainty intrinsic to the new genetics. … the central focus of concern
in medical genetics leads to … the loss of the patient's autonomy that is accompanied by the …

Presymptomatic and predictive genetic testing in minors: a systematic review of guidelines and position papers

P Borry, L Stultiëns, H Nys, JJ Cassiman… - … genetics, 2006 - Wiley Online Library
… of the Human Genetics Societies of various nations indexed on … bioethic* OR moral OR
autonomy OR normative OR statement … of patient organizations Genetic Interest Group (GIG) (36) …

[HTML][HTML] 'You should at least ask'. The expectations, hopes and fears of rare disease patients on large-scale data and biomaterial sharing for genomics research

P McCormack, A Kole, S Gainotti… - … of Human Genetics, 2016 - nature.com
… practices in their home country. Participants are concerned … groups indicate that participants
are keen to retain autonomy, … families, 36, 37 and while genetic discrimination is banned in …

Complicated shadows: a critique of autonomy in genetic counseling

RG Resta - Genetic counseling practice: Advanced concepts and …, 2010 - books.google.com
… such patients have limited choices, it is inappropriate to focus … If we rely too strongly on
patient autonomy and remain … Geneticistsviews in 36 nations. Am J Bioethics, 2: W21. …

[HTML][HTML] Genetic counseling

JM Pina-Neto - Jornal de Pediatria, 2008 - SciELO Brasil
… surveyed the opinions of 255 Chinese geneticists and found … counselors of their patients'
autonomy and acceptance of non … was lower (five children born to 36 families rate of 0.13, with …

Carrier matching and collective socialization in community genetics: Dor Yeshorim and the reinforcement of stigma

AE Raz, Y Vizner - Social Science & Medicine, 2008 - Elsevier
… are said to compromise personal autonomy, while those in … We focus here on a particular
form of genetic testing, namely … the opinions of younger, single or married women who have

Complicated shadows: The limitations of autonomy in genetic counseling practice

RG Resta - Genetic Counseling Practice: Advanced Concepts …, 2020 - Wiley Online Library
… or pediatric clinics and focused on reproductive aspects of medical genetics. Thus, it … Strict
reliance on a narrow view of patient autonomy and remaining unflinchingly nondirective will …

[HTML][HTML] Avoiding genetic genocide: understanding good intentions and eugenics in the complex dialogue between the medical and disability communities

PS Miller, RL Levine - Genetics in Medicine, 2013 - nature.com
… how people with disabilities view genetics, science, and the … university in Australia, her home
country. “Though I still can’t … of patient autonomy, 45 the concept of “enhanced autonomy” …

Ethical, social, and cultural issues related to clinical genetic testing and counseling in low-and middle-income countries: a systematic review

A Zhong, B Darren, B Loiseau, LQB He, T Chang… - Genetics in …, 2021 - nature.com
… Studies focused solely on the technological aspect of genetic testing (eg, … autonomy may
not be appropriate for collectivist cultures, where the individual’s choice incorporates opinions

Between social hypocrisy and social responsibility: professional views of eugenics, disability and repro-genetics in Germany and Israel

Y Hashiloni-Dolev, AE Raz - New Genetics and Society, 2010 - Taylor & Francis
… In this study we focus on attitudes of medical geneticists and … their nation's past to be too
heavy, none of them went as far as … This principle of parental autonomy no doubt constitutes a …