[HTML][HTML] The interface between assisted reproductive technologies and genetics: technical, social, ethical and legal issues
S Soini, D Ibarreta, V Anastasiadou, S Aymé… - … of Human Genetics, 2006 - nature.com
… genetic disease might go to a country where PGD is allowed. … ,XYY) can be found, 36 this is
not a general recommendation. Y… parents' autonomy, some professionals have problems with …
not a general recommendation. Y… parents' autonomy, some professionals have problems with …
The precision medicine nation
M Sabatello, PS Appelbaum - Hastings Center Report, 2017 - Wiley Online Library
… science—especially genetics—and citizenship has long been … of volunteers’ legal status is
required;36 the need for a racially … The conventional focus on individual autonomy as the sine …
required;36 the need for a racially … The conventional focus on individual autonomy as the sine …
Incidental findings in genetics research using archived DNA
EW Clayton - Journal of Law, Medicine & Ethics, 2008 - cambridge.org
… virtually every newborn in the country; some states even store … Their reasoning, though
focused on research results, is … ity, was driven in large part by the view that everything that can be …
focused on research results, is … ity, was driven in large part by the view that everything that can be …
[HTML][HTML] Managing expectations, rights, and duties in large-scale genomics initiatives: a European comparison
R Horn, J Merchant - European Journal of Human Genetics, 2023 - nature.com
… We compare how each country is governing data collection … and their exercise of autonomy,
has led public authorities to … any real possibility of appeal [36]. It concluded that transfers of …
has led public authorities to … any real possibility of appeal [36]. It concluded that transfers of …
A clinical perspective on ethical issues in genetic testing
RH Sijmons, IM Van Langen… - Accountability in research, 2011 - Taylor & Francis
… have an impact on applying genetics to healthcare; they may differ widely between nations,
… clinical guidance to help patients and their families make autonomous, informed decisions …
… clinical guidance to help patients and their families make autonomous, informed decisions …
The ethics of research biobanking: a critical review of the literature
K Hoeyer - Biotechnology and Genetic Engineering Reviews, 2008 - Taylor & Francis
… in 1) genetics, 2) the politics of patient rights and organizational liability, … autonomy; from the
perspective of the healthcare … and skilled jobs to the country. Furthermore, through HSD the …
perspective of the healthcare … and skilled jobs to the country. Furthermore, through HSD the …
[HTML][HTML] Only a click away—DTC genetics for ancestry, health, love… and more: A view of the business and regulatory landscape
AM Phillips - Applied & translational genomics, 2016 - Elsevier
… ' capacity to consent and compromised autonomy. If these tests are to be offered then there
… done with stored genetic data in their privacy policies, but focus on what is done with other …
… done with stored genetic data in their privacy policies, but focus on what is done with other …
Secondary findings from whole-exome/genome sequencing evaluating stakeholder perspectives. A review of the literature
J Delanne, S Nambot, A Chassagne, O Putois… - … of Medical Genetics, 2019 - Elsevier
… The aim of this work was to summarize all opinion-based … of WES and WGS varies widely
from country to country. … three focus group, entitled “Informed consent and patient autonomy”, “…
from country to country. … three focus group, entitled “Informed consent and patient autonomy”, “…
A new ethical landscape of prenatal testing: individualizing choice to serve autonomy and promote public health: a radical proposal
C Munthe - Bioethics, 2015 - Wiley Online Library
… it is not impossible for these tendencies to join in harmony,36 … First, nations differ with regard
to available resources and the … that has in the past been employed, eg by Myriad Genetics in …
to available resources and the … that has in the past been employed, eg by Myriad Genetics in …
A Brave New World of Designer Babies?
SM Suter - Berkeley Tech. LJ, 2007 - HeinOnline
… of the first sterilization law in this country, I begin with a brief … the lens of individual autonomy
and reproductive rights as … that can go wrong when genetics technology is misapplied. …
and reproductive rights as … that can go wrong when genetics technology is misapplied. …