… smaller organizations are listed. Some are quite specific eg, the 5p Society, a support group
for … are more general (eg, a national support group for fathers of children with any disability). …

… Internet-based chat support groups for parents in family-based treatment for adolescent
eating disorders: a pilot study. Eur Eat Disord Rev 2013 May;21(3):215-223. [CrossRef] [Medline] …

… The purpose of this article is to describe some of the negative presentations that should be
avoided and offer some examples of more positive presentations to secure the support for, or …

… role for patient perspectives in the regulatory process. This Article explores recent developments
in patient-… on the increasing role of patients, and patient advocacy groups, in agency …

… in a lack of knowledge among medical and healthcare providers, resulting in delayed or no
… support groups, hospitals can establish digital platforms that provide systematic healthcare …

… to a support group were more likely support group participants [20]. Therefore, health
professionals ought to get better acquainted with the topic of social media support groups if they …

… Support groups were the third most commonly reported services (58 %… advocacy/parent
support services, suggesting that parent support services may be an important adjunctive service …

… DSD patient advocates (n = 4; 1 of whom is affected), were recruited for telephonebased
focus groups from the leadership of US national advocacy/ parent support organizations. This …

… A special thank you goes to the families who participated in the advocacy parent training at
Childrens … Identified as the child’s primary support group, the family provides the necessary …

… gain insight from patient groups that support children with IEM … informing patient-centered
health care and support services … (2013) The role of patient advocacy/parent support groups. S …