A blueprint for advocacy in neonatology

DK Hubbard, L Gievers, K Rao, JAF Zupancic… - …, 2022 - publications.aap.org
… (1) As neonatologists, we advocate for patients every day in the clinical care we provide;
however, there is an urgent need for us to move beyond problem-solving for individual patients

Self-advocacy and advocacy

R Garbutt, AM Callus - … -E-Book: Intellectual Disabilities-E-Book, 2022 - books.google.com
… ’s role includes building up the skills of the members of the group and supporting the group
in … Self-help groups in Japan: historical development and current issues. International Journal …

[HTML][HTML] Recruitment & retention program for the NeuroNEXT SMA Biomarker Study: super babies for SMA!

A Bartlett, SJ Kolb, A Kingsley, KJ Swoboda… - Contemporary clinical …, 2018 - Elsevier
… Once enrollment was open, Individual SMA advocacy parent blog sites were notified about
the study and circulated study materials. We encouraged advocacy groups to use their blogs …

The Advocacy Components of Seven Parent-Child Centers: A Final Report on the Start-Up Year.

M Holmes - 1973 - ERIC
… For the'most part, new aides received only cursory pre-service training due to the demands
of ongoing service. The high turnover rate was attributed to job dissatisfaction and job

Living with intoxication-type inborn errors of metabolism: a qualitative analysis of interviews with paediatric patients and their parents

NA Zeltner, MA Landolt, MR Baumgartner… - JIMD Reports, Volume …, 2016 - Springer
… analysis of focus group and single interviews with IT-IEM patients and their … patients
and (2) to investigate differences in statement frequencies of topics related to the informant (patient

[图书][B] Understanding health care disparities among families of children with ASD: The role of advocacy, empowerment, and parent-professional partnerships

K Casagrande - 2016 - search.proquest.com
… a role in explaining these service disparities. As such, increasing parent-professional
partnerships through family-centered care and professional training may help to reduce service

[PDF][PDF] Advocacy, Views of Disability, and Reproductive Decision-making within Parent to Parent New Zealand/Matua ki te Matua Kaporeihana o Aotearoa

MG Bell, RP Fitzgerald, M Legge - 2013 - academia.edu
… in the past arranged social events, but currently social activities are … support groups outside
Parent to Parent do take on these sorts of activities.) To examine this mid-level, indirect role

Parent Education: A Key Aspect in Prevention and Intervention of Bullying in School Communities

KM Doss, SH Crawford - National …, 2023 - digitalcommons.georgiasouthern …
… safe spaces to host anti-bullying campaigns, parent support groups, and events. Social
Service Organizations Social service organizations such as the YMCA and the Boys and Girls …

Learning to partner, disabling conflict: Early indications of an improving relationship between parents and professionals with regard to service provision for children …

S Case - Disability & Society, 2001 - Taylor & Francis
… , and the effective role of parental involvement, whilst parents function within the role of service
‘… west London-based self-advocacy parent group linking with the disabled people’s move- …

Examining physician interactions with disease advocacy organizations

C Horrow, JE Pacyna, C Cosenza… - AJOB empirical …, 2019 - Taylor & Francis
… ,” or “Disease Advocacy Organizations.” For the purpose of this survey, we will use the
acronym “DAO” throughout to refer to all advocacy groups in general. …