[PDF][PDF] Family-centered caregiving and well-being of parents of children with disabilities: Linking process with outcome
G King, S King, P Rosenbaum… - Journal of pediatric …, 1999 - academia.edu
Objective: This study examined the strength of the relationship between parents' perceptions
of family-centered, professionally provided caregiving and their emotional well-being
(feelings of distress and depression). This was done in the context of other factors that might
affect well-being (child behavior problems, coping strategies of parents, protective factors in
the social environment, child factors related to disability, and family factors). Method: We
asked 164 parents of children with nonprogressive neurodevelopmental disorders (primarily …
of family-centered, professionally provided caregiving and their emotional well-being
(feelings of distress and depression). This was done in the context of other factors that might
affect well-being (child behavior problems, coping strategies of parents, protective factors in
the social environment, child factors related to disability, and family factors). Method: We
asked 164 parents of children with nonprogressive neurodevelopmental disorders (primarily …
Objective: This study examined the strength of the relationship between parents’ perceptions of family-centered, professionally provided caregiving and their emotional well-being (feelings of distress and depression). This was done in the context of other factors that might affect well-being (child behavior problems, coping strategies of parents, protective factors in the social environment, child factors related to disability, and family factors).
Method: We asked 164 parents of children with nonprogressive neurodevelopmental disorders (primarily ce-rebral palsy, spina bifida, or hydrocephalus) to complete a series of instruments measuring the constructs of interest.
Results: Structural equation modeling showed that more family-centered caregiving was a significant pre-dictor of parents’ well-being. The most important predictors of well-being were child behavior problems and protective factors in the social environment.
Conclusions: Services are most beneficial when they are delivered in a family-centered manner and address parent-identified issues such as the availability of social support, family functioning, and child behavior problems.
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