[图书][B] Genetic testing: accounts of autonomy, responsibility and blame

M Arribas-Ayllon, S Sarangi, A Clarke - 2013 - taylorfrancis.com
… experts with new resources for assigning responsibility and blame. In the accounts that we
explore in this book, we treat autonomy, responsibility and blame as formulations that seek to …

Managing self-responsibility through other-oriented blame: Family accounts of genetic testing

M Arribas-Ayllon, S Sarangi, A Clarke - Social Science & Medicine, 2008 - Elsevier
… of balancing the child's autonomy with parental responsibility. Moral presentations of
family … blameresponsibility, we focus on family accounting practices to show how self-responsibility

The micropolitics of responsibility vis‐à‐vis autonomy: parental accounts of childhood genetic testing and (non) disclosure

M Arribas‐Ayllon, S Sarangi… - Sociology of health & …, 2008 - Wiley Online Library
… on situated parental accounts of responsibility/autonomy to … rights and responsibilities
involving a range of inherited genetic … information, which occasions feelings of anxiety, guilt and …

Genetic testing for hereditary disease: attending to relational responsibility

MM Burgess… - The Journal of Clinical …, 2001 - journals.uchicago.edu
… In this article, we question the sufficiency of autonomy as the … We account for this sense of
responsibility through a concept … who has standing to judge and blame us.”Specific practices of …

[PDF][PDF] Accounting for genetic testing: familial and professional perspectives

M Arribas-Ayllon, S Sarangi, A Clarke - eLS, 2012 - academia.edu
… New genetic technologies do not so much repress … autonomy, responsibility and blame.
In contemporary liberal society, the high premium placed on rational autonomy – the obligation

The practical ethics of genetic responsibility: Non-disclosure and the autonomy of affect

M Arribas-Ayllon, K Featherstone, P Atkinson - Social Theory & Health, 2011 - Springer
… of individuals who have received a genetic diagnosis to … burden of genetic risk would provoke
anxiety, guilt and blame, and … In contrast to the biomedical view, we propose an account of …

Professional ambivalence: accounts of ethical practice in childhood genetic testing

M Arribas-Ayllon, S Sarangi, A Clarke - Journal of genetic counseling, 2009 - Springer
… ask for a test, and how to negotiate competing responsibilities … demanding a genetic test
without considering the autonomy of … guilt. The rest of the interaction is taken up by a prospective …

Owning responsible actions/selves: Role-relational trajectories in counselling for childhood genetic testing.

S Sarangi - Journal of Applied Linguistics & Professional …, 2012 - search.ebscohost.com
… Although I only briefly refer to autonomy and leave out discussion of potential blame, these
notions are intertwined when we focus on accounts of responsible actions/selves. The notion …

Healthy citizenship beyond autonomy and discipline: Tactical engagements with genetic testing

T Sharon - BioSocieties, 2015 - Springer
… themselves or to their loved ones, to avoid self-blame, to maintain a feeling of control over the
future, … These accounts diverge from typical understandings of genetic responsibility as an …

[PDF][PDF] The politics of autonomy in genetic testing of children

M Arribas-Ayllon, SK Sarangi, AJ Clarke - 2008 - academia.edu
… the rhetorical aspects of professional accounts with the contractual and regulatory aspects
of … have the relational and benign responsibility of parental autonomy which, through genetic