Goals of care among parents of children receiving palliative care
C Feudtner, LJ Beight, JY Boyden, DL Hill… - JAMA …, 2023 - jamanetwork.com
Importance While knowing the goals of care (GOCs) for children receiving pediatric palliative
care (PPC) are crucial for guiding the care they receive, how parents prioritize these goals
and how their priorities may change over time is not known. Objective To determine parental
prioritization of GOCs and patterns of change over time for parents of children receiving
palliative care. Design, Setting, and Participants A Pediatric Palliative Care Research
Network's Shared Data and Research cohort study with data collected at 0, 2, 6, 12, 18, and …
care (PPC) are crucial for guiding the care they receive, how parents prioritize these goals
and how their priorities may change over time is not known. Objective To determine parental
prioritization of GOCs and patterns of change over time for parents of children receiving
palliative care. Design, Setting, and Participants A Pediatric Palliative Care Research
Network's Shared Data and Research cohort study with data collected at 0, 2, 6, 12, 18, and …
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