People with intellectual disabilities in out‐of‐area specialist hospitals: what do families think?
Journal of Applied Research in Intellectual Disabilities, 2011•Wiley Online Library
Background Little has been published regarding the views of family members of people with
intellectual disabilities who are being cared for in out‐of‐area psychiatric hospitals. This
study explores this area with specific reference to whether culturally appropriate services
were being provided. Materials and Methods Sixteen family members were interviewed
about their views on the care their relative or partner was receiving in an out‐of‐area
hospital. Transcripts were then analysed by the study team and themes identified. Results …
intellectual disabilities who are being cared for in out‐of‐area psychiatric hospitals. This
study explores this area with specific reference to whether culturally appropriate services
were being provided. Materials and Methods Sixteen family members were interviewed
about their views on the care their relative or partner was receiving in an out‐of‐area
hospital. Transcripts were then analysed by the study team and themes identified. Results …
Background Little has been published regarding the views of family members of people with intellectual disabilities who are being cared for in out‐of‐area psychiatric hospitals. This study explores this area with specific reference to whether culturally appropriate services were being provided.
Materials and Methods Sixteen family members were interviewed about their views on the care their relative or partner was receiving in an out‐of‐area hospital. Transcripts were then analysed by the study team and themes identified.
Results Families expressed a wide range of views regarding out‐of‐area hospital care. Important themes identified were feelings of shame, concerns about safety, cultural needs not being met, lack of improvement and lack of involvement in care.
Conclusions This study highlights areas of inpatient care that family members felt were important. Views on negative aspects of care should guide areas for quality improvement initiatives for inpatient services.
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