Canadian research ethics board leadership attitudes to the return of genetic research results to individuals and their families
CV Fernandez, PP O'Rourke… - … of Law, Medicine & Ethics, 2015 - cambridge.org
… At least half of Canadian ethics board respondents to our … The Canadian Panel on Research
Ethics recently convened … of existing recommendations to offer results of research with …
Ethics recently convened … of existing recommendations to offer results of research with …
[HTML][HTML] Whole exome sequencing in South Africa: Stakeholder views on return of individual research results and incidental findings
N Van Der Merwe, R Ramesar, J De Vries - Frontiers in Genetics, 2022 - frontiersin.org
… of whether we should use existing recommendations developed by the ACMG or 100,000
… and application of international recommendations across diverse populations have become …
… and application of international recommendations across diverse populations have become …
Psychological and ethical challenges of introducing whole genome sequencing into routine newborn screening: lessons learned from existing newborn screening
… consensus on how to meet these challenges. However, it has been suggested that
recommendations … giving and that ‘a plan for the ethical, clinically oriented return of incidental …
recommendations … giving and that ‘a plan for the ethical, clinically oriented return of incidental …
Research Ethics Recommendations for Whole-Genome Research: Consensus Statement
JA Buchanan, M Cho, AL McGuire, T Caulfield - 2008 - policyarchive.org
… to advance, whole-genome research activities seem likely … consensus guidelines for ethical
research practice. To date, there has been only minimal consideration of the research ethics …
research practice. To date, there has been only minimal consideration of the research ethics …
A framework for analyzing the ethics of disclosing genetic research findings
… The Commission recommends demarcating four kinds of … 2 is outdated in the whole-genome
sequencing (WGS) era. … but important matters for the future of genetic research ethics. …
sequencing (WGS) era. … but important matters for the future of genetic research ethics. …
[引用][C] The Ethics of Conducting Genomic Research in Low-Resource Settings
Use of next generation sequencing technologies in research and beyond: are participants with mental health disorders fully protected?
IJ Groisman, G Mathieu, B Godard - BMC medical ethics, 2012 - Springer
… of researchers and their institutions, Research Ethics Boards … wide association studies, or
whole genome sequencing, and (2… No such recommendation is made when the study tools are …
whole genome sequencing, and (2… No such recommendation is made when the study tools are …
Botswana tuberculosis (TB) stakeholders broadly support scaling up next-generation whole genome sequencing: Ethical and practical considerations for Botswana …
S Molldrem, S Bagani, V Subrahmanyam… - PLOS Global Public …, 2023 - journals.plos.org
… Indeed, this anticipated future is somewhat materializing with WHO’s 2023 recommendations
for tNGS to become part of routine TB control [3]. While our study focused on stakeholders’ …
for tNGS to become part of routine TB control [3]. While our study focused on stakeholders’ …
Whole genome scanning: resolving clinical diagnosis and management amidst complex data
SE Ali-Khan, AS Daar, C Shuman, PN Ray… - … research, 2009 - nature.com
… with whole genome scanning microarrays, an early instance of whole genome analysis …
by these technologies and to discuss their medical, ethical, legal and social implications. We …
by these technologies and to discuss their medical, ethical, legal and social implications. We …
An ethical framework for research using genetic ancestry
ACF Lewis, SJ Molina, PS Appelbaum… - … in biology and …, 2023 - muse.jhu.edu
… if the research data is identifiable, standard research ethics … Although there have been many
prior recommendations on … Particularly as new whole-genome data comes online, there is …
prior recommendations on … Particularly as new whole-genome data comes online, there is …