Roles for personal informatics in chronic pain

S Felipe, A Singh, C Bradley… - 2015 9th …, 2015 - ieeexplore.ieee.org
2015 9th International Conference on Pervasive Computing …, 2015ieeexplore.ieee.org
Self-management of chronic pain is a complex and demanding activity. Multidisciplinary
pain management programs are designed to provide patients with the skills to improve,
maintain functioning and self-manage their pain but gains diminish in the long-term due to
lack of support from clinicians. Sensing technology can be a cost-effective way to extend
support for self-management outside clinical settings but they are currently under-explored.
In this paper, we report studies carried out to investigate how Personal Informatics Systems …
Self-management of chronic pain is a complex and demanding activity. Multidisciplinary pain management programs are designed to provide patients with the skills to improve, maintain functioning and self-manage their pain but gains diminish in the long-term due to lack of support from clinicians. Sensing technology can be a cost-effective way to extend support for self-management outside clinical settings but they are currently under-explored. In this paper, we report studies carried out to investigate how Personal Informatics Systems (PIS) based on wearable body sensing technology could facilitate pain self-management and functioning. Five roles for PIS emerged from a qualitative study with people with chronic pain and physiotherapists: (i) assessment, planning and prevention (ii) a direct supervisory and co-management role, (iii) facilitating deeper understanding, (iv) managing emotional states, and (v) sharing for social acceptability. A web-based survey was conducted to understand the parameters that should be tracked to support self-management and what tracked information should be shared with others. Finally, we suggest an extension to previous PIS models and propose design implications to address immediate, short-term and long-term information needs for personal use of people with chronic pain and for sharing with others.
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