The Carers' Alert Thermometer (CAT): supporting family carers of people living with motor neurone disease
MR O'Brien, BA Jack, K Kinloch… - British Journal of …, 2019 - magonlinelibrary.com
MR O'Brien, BA Jack, K Kinloch, O Clabburn, K Knighting
British Journal of Neuroscience Nursing, 2019•magonlinelibrary.comBackground: Burden and distress among family carers of people living with motor neurone
disease (MND) are reported widely. Evidence-based screening tools to help identify these
carers' needs and plan appropriate support are urgently needed. Aim: To pilot the Carers'
Alert Thermometer (CAT), a triage tool developed to identify carers' needs, with family carers
of people living with MND to determine its usefulness in identifying their need for support.
Methods: Training workshops with MND Association visitors (AVs) and staff in southwest and …
disease (MND) are reported widely. Evidence-based screening tools to help identify these
carers' needs and plan appropriate support are urgently needed. Aim: To pilot the Carers'
Alert Thermometer (CAT), a triage tool developed to identify carers' needs, with family carers
of people living with MND to determine its usefulness in identifying their need for support.
Methods: Training workshops with MND Association visitors (AVs) and staff in southwest and …
Background
Burden and distress among family carers of people living with motor neurone disease (MND) are reported widely. Evidence-based screening tools to help identify these carers' needs and plan appropriate support are urgently needed.
Aim
To pilot the Carers' Alert Thermometer (CAT), a triage tool developed to identify carers' needs, with family carers of people living with MND to determine its usefulness in identifying their need for support.
Methods
Training workshops with MND Association visitors (AVs) and staff in southwest and northwest England, followed by implementation of the CAT. A self-completed online survey and semi-structured telephone interview evaluated use of the CAT.
Findings
Sixteen participants completed the online survey with 11 volunteering to be interviewed. The CAT has potential to map change over time, help to focus on carers' needs and improve communication with carers.
Conclusion
The CAT provides a structure enabling AVs to engage in a meaningful process with family carers to identify and discuss their needs.
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