Medication adherence among pediatric patients with sickle cell disease: a systematic review

KE Walsh, SL Cutrona, PL Kavanagh, LE Crosby… - …, 2014 - publications.aap.org
pediatric patients with SCD, we conducted a systematic review of the literature. Among
pediatric patients … medication types, identify patient and medication characteristics associated …

Brain imaging findings in pediatric patients with sickle cell disease

RG Steen, T Emudianughe, GM Hankins, LW Wynn… - Radiology, 2003 - pubs.rsna.org
… The high prevalence of imaging abnormalities that we report suggests that all pediatric
patients with SCD should be screened by using MR imaging to identify patients with a brain injury…

[HTML][HTML] … and evaluation of organ function in pediatric patients undergoing haploidentical and matched related hematopoietic cell transplantation for sickle cell disease

MH Dallas, B Triplett, DR Shook, C Hartford… - Biology of Blood and …, 2013 - Elsevier
cell transplantation (HSCT) is a well-established therapy for patients with sickle cell disease
(… We report the long-term outcomes of 22 pediatric patients who underwent related donor …

Barriers to treatment adherence for pediatric patients with sickle cell disease and their families

AC Modi, LE Crosby, SM Guilfoyle… - Children's Health …, 2009 - Taylor & Francis
This study systematically identified adherence barriers and strategies in 31 adolescents with
sickle cell disease (SCD) and 71 caregivers. Qualitative data indicated that forgetting was …

Preliminary assessment of inhaled nitric oxide for acute vaso-occlusive crisis in pediatric patients with sickle cell disease

DL Weiner, PL Hibberd, P Betit, AB Cooper… - Jama, 2003 - jamanetwork.com
Context Vaso-occlusion is central to the painful crises and acute and chronic organ damage
in sickle cell disease. Abnormal nitric oxide–dependent regulation of vascular tone, …

Transition and sickle cell disease

MR DeBaun, J Telfair - Pediatrics, 2012 - publications.aap.org
… Sickle cell disease (SCD), the most common genetic disease screened for in … pediatric
mortality rate of SCD when compared with other genetic diseases or chronic diseases in pediatrics

Transition of patients with sickle cell disease from pediatric to adult care: assessing patient readiness

M McPherson, L Thaniel, CP Minniti - Pediatric blood & cancer, 2009 - Wiley Online Library
… Transition of medical care from pediatric to adult-oriented providers and facilities is a
challenge for adolescents with chronic diseases such as sickle cell disease (SCD) 1. SCD is an …

Sickle cell disease

RE Ware, M de Montalembert, L Tshilolo, MR Abboud - The Lancet, 2017 - thelancet.com
… Most adult patients with sickle cell disease reach a stage, usually in the third decade,
when chronic organ complications become the main cause of morbidity and mortality. …

PedsQL™ sickle cell disease module: feasibility, reliability, and validity

JA Panepinto, S Torres, CB Bendo… - Pediatric blood & …, 2013 - Wiley Online Library
… The 43-item PedsQL™ SCD Module was completed in a multisite study by 243 pediatric
patients with SCD and 313 parents. Participants also completed the PedsQL™ 4.0 Generic …

Use of low-dose ketamine infusion for pediatric patients with sickle cell disease-related pain: a case series

WT Zempsky, KA Loiselle, JM Corsi… - The Clinical journal of …, 2010 - journals.lww.com
Objectives Sickle cell disease-related pain is difficult to treat adequately. Pain secondary to
vasoocclusive episodes (VOE) may be unresponsive to high-dose intravenous opiates. …