… In considering the future of cystic fibrosis care, the Commission … cystic fibrosis (section 1);
future challenges of clinical care and its delivery (section 2); the building of cystic fibrosis care …

… For the clinician involved in the care of cystic fibrosis patients, the last … the cystic fibrosis
(CF) transmembrane conductance regulator (CFTR) protein [1] gave a novel impulse to CF care …

… Since then, substantial advances in basic and clinical research catalyzed therapeutic …
The Cystic Fibrosis Foundation center network provides not only opportunity to conduct clinical …

… been considered as potential treatment for cystic fibrosis [104]. Denufosol, an inhibitor of
purinergic receptors, after initial promising results in a phase 3 clinical trial failed to reach the …

… Most patients in the UK and Europe receive care coordinated by a tertiary cystic fibrosis …
local care, in many cases having formalised “shared care” with local clinics. Primary care teams …

… cystic fibrosis from 18 countries, across six continents, present a blueprint for the future of
clinical care for children and adults with cystic fibrosis… opportunities in cystic fibrosis care, some …

… analysis of the CFTR genome in search of a second mild mutation or polymorphism would
be of academic interest but is probably not indicated, as it is unlikely to alter clinical care. …

… both clinical care and trials. Children have considerable lung disease well before they are
symptomatic or demonstrate either abnormal or deteriorating lung function.31, 60 A growing …

… ERS/ECFS task force: The provision of care for adults with cystic fibrosis in Europe.
Limitations to providing adult cystic fibrosis care in Europe: results of a care centre survey. J Cyst …

Cystic fibrosis (CF), the most common autosomal hereditary pediatric disease, is no longer
restricted to childhood as modern therapy has given patients both increased longevity and …