Role of data registries in the time of COVID-19

HM Alger, JH Williams IV, JG Walchok… - … Quality and Outcomes, 2020 - Am Heart Assoc
… health care providers caring for patients with COVID-19 who are … Retrospective studies of
registry data could address the … COVID-19 as well as the impact this finding had on provider

Dermatology COVID-19 registries: updates and future directions

EE Freeman, GC Chamberlin, DE McMahon… - Dermatologic …, 2021 - derm.theclinics.com
… The PsoProtect registry sought to characterize the course of COVID-19 in people with …
patient-reported and provider-reported cases indicate that COVID-19 severity in HS patients …

Rheumatic disease and COVID-19: initial data from the COVID-19 Global Rheumatology Alliance provider registries

MA Gianfrancesco, KL Hyrich, L Gossec… - The Lancet …, 2020 - thelancet.com
coronavirus disease 2019 (COVID-19) outcomes is needed. When reporting a case to the
COVID-19 Global Rheumatology Alliance registry, providers … patient had COVID-19. Although …

COVID-19 and cancer: a review of the registry-based pandemic response

A Desai, TJ Mohammed, N Duma, MC Garassino… - JAMA …, 2021 - jamanetwork.com
… To our knowledge, the CCC19 registry was the first among many COVID-19 registries
developed for patients with cancer. The CCC19 registry contained more than 10 000 cases as of …

American Heart Association COVID-19 CVD registry powered by get with the guidelines

HM Alger, C Rutan, JH Williams IV… - … Quality and Outcomes, 2020 - Am Heart Assoc
… practice standards of care for patients with COVID-19, a major goal of the registry is to gather
a robust, … As healthcare providers grapple with the challenges of treating patients during the …

Access to and safety of COVID-19 convalescent plasma in the United States Expanded Access Program: A national registry study

JW Senefeld, PW Johnson, KL Kunze, EM Bloch… - PLoS …, 2021 - journals.plos.org
… -2, and either had or were judged by a healthcare provider to be at high risk of progression
to severe or life-threatening COVID-19. Severe COVID-19 was defined by 1 or more of the …

Long COVID in the skin: a registry analysis of COVID-19 dermatological duration

DE McMahon, AE Gallman, GJ Hruza… - The Lancet Infectious …, 2021 - thelancet.com
… A limitation of this registry-based study is that providers might have entered data at only
one … Indeed, 58% of providers reported that patients had ongoing COVID-19 dermatological …

… in presentation and outcomes for patients hospitalized with COVID-19: findings from the American Heart Association's COVID-19 Cardiovascular Disease Registry

F Rodriguez, N Solomon, JA De Lemos, SR Das… - Circulation, 2021 - Am Heart Assoc
… cardiovascular outcomes associated with COVID-19 across diverse hospitals and … COVID-19.
We hypothesized that Black and Hispanic patients would be overrepresented in COVID-19

Centralized registry for COVID-19 research recruitment: Design, development, implementation, and preliminary results

A Peeler, H Miller, O Ogungbe, CL Land… - Journal of Clinical and …, 2021 - cambridge.org
… research recruitment registry to optimize awareness and participant enrollment for COVID-19-…
Methods:Planning began in March 2020, and the registry launched in July 2020. The …

The impact of the Covid-19 pandemic on the incidence of diseases and the provision of primary care: A registry-based study

S Van den Bulck, J Crèvecoeur, B Aertgeerts… - PloS one, 2022 - journals.plos.org
… referrals could be explained by the increased use of teleconsultations in Belgium, which
appeared to be an accessible way for patients to consult their primary healthcare provider to …