Communicating genetic information in the family: the familial relationship as the forgotten factor
R Gilbar - Journal of Medical Ethics, 2007 - jme.bmj.com
… Communicating genetic information to family members has … for solving familial tensions
over genetic information. This … , which, in the context of genetics, takes into account the effect …
over genetic information. This … , which, in the context of genetics, takes into account the effect …
Communication of genetic information within families: the case for familial comity
… Existing ethical principles offer little guidance in relation to this issue. We … genetic information
may be viewed as collective or shared information, and we introduce the concept of ‘familial …
may be viewed as collective or shared information, and we introduce the concept of ‘familial …
Process and outcome in communication of genetic information within families: a systematic review
CL Gaff, AJ Clarke, P Atkinson, S Sivell… - … of Human Genetics, 2007 - nature.com
… unrelated to the concerns of the family member. The impact of communication on the
individual, family members, and family relationships is of concern to the individual conveying the …
individual, family members, and family relationships is of concern to the individual conveying the …
Guidelines for disclosing genetic information to family members: from development to use
B Godard, T Hurlimann, M Letendre, N Egalite… - Familial cancer, 2006 - Springer
… tests to identify individuals with an increased risk of hereditary diseases has generated
legal and ethical controversies in relation to the duty of physicians to warn family members of …
legal and ethical controversies in relation to the duty of physicians to warn family members of …
Whose genes are these anyway: familial conflicts over access to genetic information
SM Suter - Mich. L. Rev., 1992 - HeinOnline
… A further fear of individuals in these contexts is that disclosure might harm family relations,
especially because being a carrier influences procreative decisions.' The patient may feel that …
especially because being a carrier influences procreative decisions.' The patient may feel that …
Is there a duty to share genetic information?
SM Liao - Journal of medical ethics, 2009 - jme.bmj.com
… genetic information is shared among family members. There may be other ways of grounding
the duty to share our genetic information with family … and weaker genetic relations with …
the duty to share our genetic information with family … and weaker genetic relations with …
Disclosure of familial genetic information: perceptions of the duty to inform
LS Lehmann, JC Weeks, N Klar, L Biener… - The American journal of …, 2000 - Elsevier
BACKGROUND: The familial implications of genetic information can lead to a conflict … at-risk
relatives about susceptibility to genetic diseases. As genes are discovered that can identify …
relatives about susceptibility to genetic diseases. As genes are discovered that can identify …
Communication of information about genetic risks: putting families at the center
… We argue that genetic information is inextricably linked to the family and that communicating
… risks is a process grounded within the broader milieu of family relationships and functioning. …
… risks is a process grounded within the broader milieu of family relationships and functioning. …
Factors influencing intrafamilial communication of hereditary breast and ovarian cancer genetic information
G Nycum, D Avard, BM Knoppers - … Journal of Human Genetics, 2009 - nature.com
… sphere and place a limit on perceived responsibility to disclose genetic information to family
… Rather, there is a tendency to equate familial relation with emotional and social ties. In one …
… Rather, there is a tendency to equate familial relation with emotional and social ties. In one …
Disclosure of genetic information to relatives in Israel: between privacy and familial responsibility
R Gilbar, S Barnoy - New Genetics and Society, 2012 - Taylor & Francis
… familial aspects of genetic information have produced a heated debate regarding the perception
of genetic information. … of the relationship between the perception of genetic information (…
of genetic information. … of the relationship between the perception of genetic information (…
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