Family caregiving in serious illness in the United States: Recommendations to support an invisible workforce

JF Bell, RL Whitney, HM Young - Journal of the American …, 2019 - Wiley Online Library
… in three high-expenditure serious illness groups (three or … dementia, and illness at the end
of life) had a family caregiver, and … Family caregivers assist individuals with serious illness by …

Research priorities in family caregiving: process and outcomes of a conference on family-centered care across the trajectory of serious illness

TA Harvath, JM Mongoven, JT Bidwell… - The …, 2020 - academic.oup.com
serious illness is growing exponentially at a time when availability of both family and professional
family caregivers … been conducted in the field of family caregiving, and we have made …

Improving support for family caregivers of people with a serious illness in the United States: Strategic agenda and call to action

P Hudson, RS Morrison, R Schulz… - Palliative Medicine …, 2020 - liebertpub.com
… enhance the future of family caregiver support of people with serious illness within the United
… quality of life of family caregivers of people living with a serious illness in the United States. …

Size and characteristics of family caregiving for people with serious illness: a population-based survey

V Van Goethem, S Dierickx, L Deliens… - Palliative & Supportive …, 2023 - cambridge.org
… -demographic characteristics of family caregivers of people with serious illness, family
caregivers of people with other conditions and people not providing family care. We conducted …

The impact of serious illness on patients' families

KE Covinsky, L Goldman, EF Cook, R Oye, N Desbiens… - Jama, 1994 - jamanetwork.com
… Many families of seriously ill patients experience severe caregiving and financial burdens.
Families of younger, poorer, and more functionally dependent patients are most likely to …

[HTML][HTML] The family caregiving crisis meets an actual pandemic

EE Kent, KA Ornstein, JN Dionne-Odom - Journal of pain and symptom …, 2020 - Elsevier
… Three major stressors encapsulate the new challenges COVID-19 has imposed on serious
illness family caregivers. The first is the unintended consequences of social distancing, which …

Caregiving for advanced chronic illness patients

AM Wilkinson, J Lynn - Techniques in Regional Anesthesia and Pain …, 2005 - Elsevier
… ’s illness—the illness trajectory—shapes the caregiver’s … , chronic illness represent differing
patient and family caregiver … of families lost all or most of their savings during serious illness, …

Changing structures and processes to support family caregivers of seriously ill patients

R Schulz, SR Beach, EM Friedman… - Journal of palliative …, 2018 - liebertpub.com
… to younger individuals with serious illness and disability. Family caregivers arrange and attend
Family members have always been the primary source of support and assistance to older …

Serious illness conversations in patients with multiple myeloma and their family caregivers—A qualitative interview study

C Borregaard Myrhøj… - European Journal of …, 2022 - Wiley Online Library
family caregivers. This study seeks to explore how patients with MM and family caregivers
experience serious illness … the current knowledge of serious illness conversations focusing on …

… caregivers of people with a serious illness supported by healthcare professionals in their caregiving tasks? A cross-sectional survey of bereaved family caregivers

O Matthys, S Dierickx, L Deliens, L Lapeire… - Palliative …, 2022 - journals.sagepub.com
… to investigate how family caregivers of people with serious illness are supported by healthcare
professionals in their caregiving tasks. Most take on many different caregiving tasks in the …