National profile of children with Down syndrome: disease burden, access to care, and family impact
RJ McGrath, ML Stransky, WC Cooley… - The Journal of …, 2011 - Elsevier
… Down syndrome, the impact of Down syndrome on families and access to health care for
persons with Down syndrome … CSHCN have unmet health care and family support needs15, 16 …
persons with Down syndrome … CSHCN have unmet health care and family support needs15, 16 …
Families of persons with Down syndrome: New perspectives, findings, and research and service needs
RM Hodapp - Mental retardation and developmental disabilities …, 2007 - Wiley Online Library
… the families of offspring with Down syndrome, this … of families of offspring with disabilities.
In reviewing the existing studies, mothers, fathers, and siblings cope slightly better than family …
In reviewing the existing studies, mothers, fathers, and siblings cope slightly better than family …
Family functioning in families with a child with Down syndrome: a mixed methods approach
K Povee, L Roberts, J Bourke… - Journal of Intellectual …, 2012 - Wiley Online Library
… : What is the impact of having a child with Down syndrome on family functioning? The aim
of … are associated with family functioning in families with a child with Down syndrome. It was …
of … are associated with family functioning in families with a child with Down syndrome. It was …
A population-based assessment of the health, functional status, and consequent family impact among children with Down syndrome
LA Schieve, SL Boulet, MD Kogan… - Disability and Health …, 2011 - Elsevier
… needs and family financial impacts. Both health and functional difficulties increase a child’s
health … to a concurrent family financial impact, even among families with insurance coverage. …
health … to a concurrent family financial impact, even among families with insurance coverage. …
[HTML][HTML] Families of children with Down syndrome: What we know and what we need to know
M Cuskelly, P Hauser-Cram, M Van Riper - 2008 - down-syndrome.org
… known about families of children with Down syndrome. In … of the impact of a child with Down
syndrome on families as a … demands for families as the individual with Down syndrome ages, …
syndrome on families as a … demands for families as the individual with Down syndrome ages, …
Family perspectives about Down syndrome
BG Skotko, SP Levine, EA Macklin… - American Journal of …, 2016 - Wiley Online Library
… with Down syndrome (DS) might impact the family unit. Few studies, to date, have surveyed
families about their life experiences. For this investigation, we examined 41 family attitudes, …
families about their life experiences. For this investigation, we examined 41 family attitudes, …
[HTML][HTML] The impact on family among Down syndrome children with early intervention
… Child with Down’s syndrome is an individual who is suitable and eligible to receive early …
to measure the family outcome among parents of Down syndrome children, on the impact of …
to measure the family outcome among parents of Down syndrome children, on the impact of …
[HTML][HTML] Families of children with Down syndrome
C Cunningham - Down Syndrome Research and Practice, 1996 - down-syndrome.org
… positive effects for many families when one member has Down syndrome. The results …
families and of individuals with Down syndrome. Some families and children with Down syndrome …
families and of individuals with Down syndrome. Some families and children with Down syndrome …
[PDF][PDF] Influence of child diagnosis on family and parental functioning: Down syndrome versus other
BM Cahill, LM Glidden - American Journal on Mental Retardation, 1996 - academia.edu
… whether raising a child with Down syndrome affects a family and its members differently
than … First, we compared families of children with Down syndrome to families of children with …
than … First, we compared families of children with Down syndrome to families of children with …
Family variables and quality of life in children with down syndrome: A scoping review
A Lee, K Knafl, M Van Riper - International Journal of Environmental …, 2021 - mdpi.com
… The purpose of this scoping review was to identify the family and … with Down syndrome, the
frequency with which different relationships have been studied, and the extent to which family …
frequency with which different relationships have been studied, and the extent to which family …
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